ALS-specific cognitive and behavior changes associated with advancing disease stage in ALS
C Crockford, J Newton, K Lonergan, T Chiwera… - Neurology, 2018 - AAN Enterprises
Objective To elucidate the relationship between disease stage in amyotrophic lateral
sclerosis (ALS), as measured with the King's Clinical Staging System, and cognitive and …
sclerosis (ALS), as measured with the King's Clinical Staging System, and cognitive and …
[HTML][HTML] Caregiving in ALS–a mixed methods approach to the study of burden
M Galvin, B Corr, C Madden, I Mays, R McQuillan… - BMC palliative …, 2016 - Springer
Background Caregiver burden affects the physical, psychological and emotional well-being
of the caregiver. The purpose of this analysis was to describe an informal caregiver cohort …
of the caregiver. The purpose of this analysis was to describe an informal caregiver cohort …
Screening for cognitive dysfunction in ALS: validation of the Edinburgh Cognitive and Behavioural ALS Screen (ECAS) using age and education adjusted normative …
M Pinto-Grau, T Burke, K Lonergan… - … Lateral Sclerosis and …, 2017 - Taylor & Francis
Background: Cognitive and behavioural changes are an important aspect in Amyotrophic
Lateral Sclerosis (ALS). The Edinburgh Cognitive and Behavioural ALS Screen (ECAS) …
Lateral Sclerosis (ALS). The Edinburgh Cognitive and Behavioural ALS Screen (ECAS) …
Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis
Objectives Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND),
is a debilitating terminal condition. Informal caregivers are key figures in ALS care provision …
is a debilitating terminal condition. Informal caregivers are key figures in ALS care provision …
[HTML][HTML] Individual quality of life in spousal ALS patient-caregiver dyads
M Galvin, T Gavin, I Mays, M Heverin… - Health and Quality of Life …, 2020 - Springer
Background Quality of life is a basic goal of health and social care. The majority of people
with Amyotrophic Lateral Sclerosis (ALS) are cared for at home by family caregivers. It is …
with Amyotrophic Lateral Sclerosis (ALS) are cared for at home by family caregivers. It is …
From first symptoms to diagnosis of amyotrophic lateral sclerosis: perspectives of an Irish informal caregiver cohort—a thematic analysis
M Galvin, R Gaffney, B Corr, I Mays, O Hardiman - BMJ open, 2017 - bmjopen.bmj.com
Objectives Informal caregivers play an integral part in the management of amyotrophic
lateral sclerosis (ALS). The objective of this study was to explore the journey from first …
lateral sclerosis (ALS). The objective of this study was to explore the journey from first …
Caregivers of patients with amyotrophic lateral sclerosis: investigating quality of life, caregiver burden, service engagement, and patient survival
Few studies in amyotrophic lateral sclerosis (ALS) have profiled disease-specific features of
the condition in conjunction with assessment of caregivers' burden, distress, quality of life …
the condition in conjunction with assessment of caregivers' burden, distress, quality of life …
Measuring reliable change in cognition using the Edinburgh Cognitive and Behavioural ALS Screen (ECAS)
C Crockford, J Newton, K Lonergan… - … Lateral Sclerosis and …, 2018 - Taylor & Francis
Background: Cognitive impairment affects approximately 50% of people with amyotrophic
lateral sclerosis (ALS). Research has indicated that impairment may worsen with disease …
lateral sclerosis (ALS). Research has indicated that impairment may worsen with disease …
A preliminary evaluation of Acceptance and Commitment Therapy (ACT) training in Sierra Leone
C Stewart, RG White, B Ebert, I Mays, J Nardozzi… - Journal of Contextual …, 2016 - Elsevier
Concerted efforts are being made to scale up psychological interventions in low and middle-
income countries (LMIC). Acceptance and Commitment Therapy (ACT) aims to reduce …
income countries (LMIC). Acceptance and Commitment Therapy (ACT) aims to reduce …
Health and social care costs of managing amyotrophic lateral sclerosis (ALS): an Irish perspective
S Connolly, C Heslin, I Mays, B Corr… - … Lateral Sclerosis and …, 2015 - Taylor & Francis
The aim of this study was to quantify the health and social care costs associated with
managing amyotrophic lateral sclerosis (ALS) in Ireland. Resource use of a representative …
managing amyotrophic lateral sclerosis (ALS) in Ireland. Resource use of a representative …