Engaging homeless persons in end of life preparations

J Gen Intern Med. 2008 Dec;23(12):2031-6; quiz 2037-45. doi: 10.1007/s11606-008-0771-1. Epub 2008 Sep 18.

Abstract

Background: There are no prospective studies that have investigated the effects of an intervention to improve end of life (EOL) care in an underserved population.

Objective: To determine whether homeless persons will complete an advance directive (AD).

Design: Randomized trial comparing two modes of providing an opportunity for homeless persons to complete an AD. Half of the subjects were randomized to a self-guided group (SG) who were given an AD and written instructions; the other half were given the same material but, in addition, were offered the opportunity to receive guidance to complete the AD (CG).

Participants: Fifty-nine homeless persons recruited from a drop-in center.

Measures: Rate of AD completion and baseline and 3-month follow-up EOL-related knowledge, attitudes, and behaviors.

Results: The overall AD completion rate was 44%, with a statistically significant higher completion rate of 59% in the CG group compared to 30% in the self-guided only group. Frequency of worry about death decreased among those who filled out an AD from 50% to 12.5%, and also among those who did not (25% to 12.5%) (p < .05). Among those who filled out an AD, there were increases in plans to write down EOL wishes (56% to 100%; p < .05) and plans to talk about these wishes with someone (63% to 94%; p < .05).

Conclusion: This study demonstrates that people living in dire economic and social situations will complete an AD when offered the opportunity. While offering guidance resulted in higher rates of completion; even a simple self-guided AD process can achieve completion of ADs in this population.

Publication types

  • Comparative Study
  • Randomized Controlled Trial
  • Research Support, N.I.H., Extramural

MeSH terms

  • Adult
  • Advance Directives / psychology*
  • Advance Directives / trends
  • Attitude to Death
  • Female
  • Follow-Up Studies
  • Humans
  • Ill-Housed Persons / education
  • Ill-Housed Persons / psychology*
  • Male
  • Middle Aged
  • Palliative Care / methods
  • Palliative Care / psychology
  • Palliative Care / trends
  • Patient Participation / methods*
  • Patient Participation / psychology*
  • Patient Participation / trends
  • Terminal Care / psychology
  • Terminal Care / trends