How individuals coping with HIV/AIDS use the Internet

Health Educ Res. 2001 Dec;16(6):709-19. doi: 10.1093/her/16.6.709.

Abstract

Although identified 20 years ago, HIV/AIDS remains among the most serious disease epidemics of modern times. Because of the stigmatization associated with infection, no health crisis has rivaled HIV/AIDS in underscoring the need for emotional, informational and instrumental support. The critical role that support plays in coping with HIV/AIDS is well documented. Adults with HIV/AIDS have utilized traditional means of support--family, friends and community-based service organizations--in coping with their illness. Recently, however, the Internet has been recognized as a potential avenue for support. Although the Internet may prove promising, little is known about how the wide array of resources available via the Internet is used. The purpose of this study was to investigate how individuals with HIV/AIDS use the Internet in coping with their illness. This research study employed a descriptive qualitative design that used in-depth, semi-structured, face-to-face interviews for data collection. The sample of 10 purposefully selected individuals living with HIV/AIDS reflected diversity in gender, age, race, education, employment, number of years living with HIV/AIDS and Internet use. Data analysis guided by the constant comparative method revealed four themes. Individuals with HIV/AIDS use the Internet for finding information, making social connections, advocating and escaping.

MeSH terms

  • Acquired Immunodeficiency Syndrome / psychology
  • Adaptation, Psychological*
  • Adult
  • Female
  • Georgia
  • HIV Infections / psychology*
  • Health Care Surveys
  • Health Education / methods
  • Health Knowledge, Attitudes, Practice
  • Health Services Accessibility / standards
  • Humans
  • Information Services / standards
  • Information Services / statistics & numerical data
  • Internet / statistics & numerical data*
  • Male
  • Middle Aged
  • Patient Advocacy / psychology
  • Patient Participation / psychology*
  • Patient Participation / statistics & numerical data*
  • Relaxation / psychology
  • Social Support