Abstract
It is widely recognized that traditional informed consent requirements are highly problematic in the context of population-based genetic research. This article is based on a qualitative study that describes and analyses the consenting procedures and perceptions of donors to the North Cumbria Community Genetics Project (NCCGP), a DNA bank in northwest England. The NCCGP collected placenta and cord tissue, as well as maternal blood samples and health and lifestyle information, in order to conduct genetic epidemiological studies. The findings show that the nature of the sample (i.e. afterbirth) significantly impacted donors’ decision to donate. The antenatal context also influenced the way the request was framed to potential donors, who had a limited understanding of the aims of the biobank. However, the article concludes that a lack of understanding on the part of donors is not necessarily an ethical problem and that efforts to re-think informed consent guidelines may benefit from paying greater attention to the factors that motivate people to donate in the first place.
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aMichael Barr works in the BIOS Centre at the London School of Economics and Political Science. His interests include the history of biomedical ethics and the social and ethical implications of genome-based antidepressants. Previously, he worked for five years in China and in Egypt as an English teacher. He did his undergraduate work in international relations and earned his MA in theology and PhD in philosophy from the University of Durham while working as a research assistant at the PEALS Institute at the University of Newcastle. He has published on the history of medical ethics education in Britain, the relationship between rights and obligations in relation to informed consent and research ethics, and the social and ethics aspects of genetic epidemiology and the pharmacogenomics of depression.
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Barr, M. ‘I'm not Really Read up on Genetics’: Biobanks and the Social Context of Informed Consent. BioSocieties 1, 251–262 (2006). https://doi.org/10.1017/S1745855206060029
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DOI: https://doi.org/10.1017/S1745855206060029