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Patient Journey: Implications for Improving and Integrating Care for Older Adults with Chronic Obstructive Pulmonary Disease*

Published online by Cambridge University Press:  19 April 2012

Karen Jackson ,
Nelly D. Oelke ,
Jeanne Besner  and
Alexandra Harrison
Karen Jackson*
Affiliation:
Alberta Health Services
Nelly D. Oelke
Affiliation:
University of British Columbia
Jeanne Besner
Affiliation:
At the time of this study Dr. Besner was with Alberta Health Services
Alexandra Harrison
Affiliation:
University of Calgary
*
†Correspondence and requests for offprints should be sent to / La correspondance et les demandes de tirés-à-part doivent être adressées à: Karen Jackson, R.N., B.Sc.N., M.Ed. Workforce Research and Evaluation Unit Alberta Health Services 10301 Southport Lane S.W. Calgary, Alberta, T2W 1S7 Canada (karen.jackson@albertahealthservices.ca)
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Abstract

Many patients, particularly older patients, interact with multiple providers while accessing health care services in a variety of different settings over extended periods of time. Understanding older patients’ experiences of their journeys through the health system is critical to improving service integration and quality of care. In this study, we have summarized the experiences of four patients living with chronic obstructive pulmonary disease as they interacted with the health care system over a three-month period following hospital discharge. Guided by case study methodology, we gathered data through semi-structured interviews and patient logs. Three overarching themes – social support, system navigation, and access – emerged from the data. Attending to provider-patient and provider-provider communication, and to patient social support and self-care needs, could improve integration and care outcomes. Achieving what patients perceive as an integrated and effective system will require time and commitment.

Résumé

Beacoup de patients, surtout les patients plus âgés, interagissent avec fournisseurs multiples, tout en avant accès aux services des soins de santé dans une variété de milieux divers pendants longues périodes. Comprendre les expériences des patients plus âgés pendant leurs voyages à travers le système de santé est essentielle pour améliorer l’intégration des services et la qualité des soins. Dans cette étude, nous avons résumé les expériences de quatre patients vivant avec la maladie pulmonaire obstructive chronique en interaction avec le système des soins de santé pendant une période de trois mois après la sortie de l’hôpital. Guidé par la méthodologie d’étude de cas, on a réunis les données par le biais des entretiens semi-structurés et des journaux de patients. Trois grands thèmes - le soutien social, la navigation à travers le système, et l’accès aux soins – ont émergé à partir des données. L’attention à la communication entre fournisseur-patient et prestataire-fournisseur, ainsi que le soutien social du patient, et les besoins des soins auto-administrés, pourraient améliorer l’intégration et les résultats des soins. Pour réaliser de ce que les patients perçoivent comme une système integrée et efficace, il faudra du temps et de l’engagement.

Keywords

viellissementexpérience d’un patientvoyage d’un patientsoins centrés sur le patientintégrationagingpatient experiencepatient journeypatient-centered careintegration
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 31 , Issue 2 , June 2012 , pp. 223 - 233
Copyright
Copyright © Canadian Association on Gerontology 2012

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Footnotes

*

We sincerely appreciate the work on this study completed by Daniel Leffelaar, who at the time of the study was a Bachelor of Health Sciences student, University of Calgary.

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