Last hours of living

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Advance preparation

Care during the last hours of life is a core competency of every physician and health care worker [4], [5], [6]. People who know what to expect have a different experience of dying and death than people who are ignorant of the process. Time spent preparing patients, family members, and caregivers for the end of life helps to reduce anxiety and fear; increase competence and confidence to provide care; increase the sense of value and gifting during the process; create good memories of the

Managing the dying process

As the last hours of life evolve, the many common, irreversible signs and symptoms can be alarming if not understood by the family (see Box 1). Reassess the need for every therapeutic intervention. Stop medications and therapies that are inconsistent with the patient's goals of care. Give only medications needed to manage symptoms (eg, pain, breathlessness, terminal delirium, secretions, seizures) (Table 2). Base pharmacologic and nonpharmacologic management on the etiology and underlying

When death occurs

When the expected death occurs (see Box 1), the focus of care shifts from the patient to the family and caregivers (see Box 2). Everyone has a different experience and a personal sense of loss. Even though the death had been anticipated for some time, no one knows what the loss feels like until it actually occurs. To help them address their acute grief, encourage family members and caregivers to spend as much time as they need with the body. It may take hours, days, weeks, or even months for

Bereavement

Immediately after a death, bereaved individuals need time to recover from the acute stress and fatigue and to restore their environments to a more normal state. As they begin to realize the significance of the loss and its impact on their lives, they are likely to experience an intense grief reaction with multiple cognitive, emotional, and physical responses (Table 3), and they may require considerable ongoing support to help them deal with all the changes [58], [59], [60], [61], [62]. Some

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References (66)

  • B. Tuckman

    Developmental sequence in small groups

    Psychol Bull

    (1965)
  • B. Tuckman et al.

    Stages of small group development

    Group and Organizational Studies

    (1977)
  • F.D. Ferris et al.

    A model to guide hospice palliative care

    (2002)
  • L.L. Emanuel et al.

    The Education for Physicians on End-of-Life Care (EPEC) curriculum

    (1999)
  • J. Ellersahw et al.

    Care of the dying patient: the last hours or days of life

    BMJ

    (2003)
  • T.G.G. Ferris et al.

    When the patient dies: a survey of medical housestaff about care after death

    J Palliative Med

    (1998)
  • N. Keller et al.

    Characterization of an acute inpatient hospice palliative care unit in a US teaching hospital

    J Nurs Admin

    (1996)
  • D. Walsh et al.

    Managing a palliative oncology program: the role of a business plan

    J Pain Symptom Manage

    (1994)
  • R. Twycross et al.

    The terminal phase

  • C.L. Fulton et al.

    Physiotherapy

  • P. Walker

    The pathophysiology and management of pressure ulcers

  • E. Bruera et al.

    Clinical management of cachexia and anorexia

  • J.C. Ahronheim et al.

    The sloganism of starvation

    Lancet

    (1990)
  • T.E. Finucane et al.

    Tube feeding in patients with advanced dementia: a review of the evidence

    JAMA

    (1999)
  • R.M. McCann et al.

    Comfort care for terminally ill patients: the appropriate use of nutrition and hydration

    JAMA

    (1994)
  • Parenteral nutrition in patients receiving cancer chemotherapy

    Ann Intern Med

    (1989)
  • J.A. Billings

    Comfort measures for the terminally ill: is dehydration painful?

    J Am Geriatr Soc

    (1985)
  • J.E. Ellershaw et al.

    Dehydration and the dying patient

    J Pain Symptom Manage

    (1995)
  • C.F. Musgrave et al.

    The sensation of thirst in dying patients receiving IV hydration

    J Palliative Care

    (1995)
  • D.R. Musgrave

    Terminal dehydration: to give or not to give intravenous fluids?

    Cancer Nurs

    (1990)
  • E. Bruera et al.

    Hypodermoclysis for the administration of fluids and narcotic analgesics in patients with advanced cancer

    J Pain Symptom Manage

    (1990)
  • W. Lethen

    Mouth and skin problems

  • B.M. Mount

    Care of dying patients and their families

  • F.R. Freemon

    Delirium and organic psychosis

  • I. Lichter et al.

    The last 48 hours of life

    J Palliative Care

    (1990)
  • R. Twycross et al.

    The terminal phase

  • R. Voltz et al.

    Palliative therapy in the terminal stage of neurological disease

    J Neurol

    (1997)
  • N. Sykes et al.

    The use of opioids and sedative at the end of life

    Lancet Oncol

    (2003)
  • S. Nuland

    How we die

    (1995)
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