Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future collaborations
Annelise Roennow, Maureen Sauvé, Joep Welling, Robert J Riggs, Ann Tyrrell Kennedy, Ilaria Galetti, Edith Brown, Catarina Leite, Alex Gonzalez, Alexandra Paula Portales Guiraud, François Houÿez, Rob Camp, Annie Gilbert, Martina Gahlemann, Lizette Moros, Jose Luis Luna Flores, Friedrich Schmidt, Wiebke Sauter, Henrik Finnern
BMJ Open Dec 2020, 10 (12) e039473; DOI: 10.1136/bmjopen-2020-039473
