Cystic fibrosis

Discrete choice experiment (DCE) to quantify the influence of trial features on the decision to participate in cystic fibrosis (CF) clinical trials
Rebecca Anne Dobra, Marco Boeri, Stuart Elborn, Frank Kee, Susan Madge, Jane C Davies

BMJ Open Mar 2021, 11 (3) e045803; DOI: 10.1136/bmjopen-2020-045803
Utilisation, expenditure and cost-effectiveness of cystic fibrosis drugs in Ireland: a retrospective analysis of a national pharmacy claims database
Amelia Smith, Michael Barry

BMJ Open Nov 2020, 10 (11) e040806; DOI: 10.1136/bmjopen-2020-040806
Feasibility study for supporting medication adherence for adults with cystic fibrosis: mixed-methods process evaluation
Daniel Hind, Sarah J Drabble, Madelynne A Arden, Laura Mandefield, Simon Waterhouse, Chin Maguire, Hannah Cantrill, Louisa Robinson, Daniel Beever, Alex Scott, Sam Keating, Marlene Hutchings, Judy Bradley, Julia Nightingale, Mark I Allenby, Jane Dewar, Pauline Whelan, John Ainsworth, Stephen J Walters, Martin J Wildman, Alicia O'Cathain

BMJ Open Oct 2020, 10 (10) e039089; DOI: 10.1136/bmjopen-2020-039089
Protocol for Project Fizzyo, an analytic longitudinal observational cohort study of physiotherapy for children and young people with cystic fibrosis, with interrupted time-series design
Emma Raywood, Helen Douglas, Kunal Kapoor, Nicole Filipow, Nicky Murray, Rachel O'Connor, Lee Stott, Greg Saul, Tim Kuzhagaliyev, Gwyneth Davies, Olga Liakhovich, Tempest Van Schaik, Bianca Furtuna, John Booth, Harriet Shannon, Mandy Bryon, Eleanor Main

BMJ Open Oct 2020, 10 (10) e039587; DOI: 10.1136/bmjopen-2020-039587
Qualitative exploration of health professionals’ experiences of communicating positive newborn bloodspot screening results for nine conditions in England
Jane Chudleigh, Holly Chinnery, Jim R Bonham, Ellinor Olander, Louise Moody, Alan Simpson, Stephen Morris, Fiona Ulph, Mandy Bryon, Kevin Southern

BMJ Open Oct 2020, 10 (10) e037081; DOI: 10.1136/bmjopen-2020-037081
A systematic review of patient-reported outcome measures (PROMs) in cystic fibrosis
Irushi Ratnayake, Susannah Ahern, Rasa Ruseckaite

BMJ Open Oct 2020, 10 (10) e033867; DOI: 10.1136/bmjopen-2019-033867
Barriers and facilitators to physical activity among children, adolescents, and young adults with cystic fibrosis: a systematic review and thematic synthesis of qualitative research
Sarah Denford, Samantha van Beurden, Paul O'Halloran, Craig Anthony Williams

BMJ Open Feb 2020, 10 (2) e035261; DOI: 10.1136/bmjopen-2019-035261
Discrete choice experiment to evaluate preferences of patients with cystic fibrosis among alternative treatment-related health outcomes: a protocol
Charlie McLeod, Richard Norman, Andre Schultz, Steven Mascaro, Steve Webb, Tom Snelling

BMJ Open Aug 2019, 9 (8) e030348; DOI: 10.1136/bmjopen-2019-030348
Enhancing intrinsic motivation for physical activity among adolescents with cystic fibrosis: a qualitative study of the views of healthcare professionals
Sarah Denford, Kelly A Mackintosh, Melitta A McNarry, Alan R Barker, Craig Anthony Williams

BMJ Open Jun 2019, 9 (6) e028996; DOI: 10.1136/bmjopen-2019-028996
A smartphone application for reporting symptoms in adults with cystic fibrosis: protocol of a randomised controlled trial
Jamie Wood, Sue Jenkins, David Putrino, Siobhain Mulrennan, Sue Morey, Nola Cecins, Kylie Hill

BMJ Open Apr 2018, 8 (4) e021136; DOI: 10.1136/bmjopen-2017-021136

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