Table 2

Patient measures and timing of administration

Timing of administration
DomainMeasurement toolValidatedBase lineAfter first conversation or 2 months after enrolmentEvery 2 months
Demographics
Patient acceptability‘Patient Acceptability’
Quality of lifeSF-12
PeacefulnessPEACE Questionnaire
Life prioritiesPurpose designed
Goals of treatmentDichotomized choice question from SUPPORT study
Therapeutic allianceModified Human Connection Scale
AnxietyGeneralized Anxiety Disorder (GAD 7)
DepressionPatient Health Questionnaire (PHQ-9)
Quality of communicationQuality of Communication with Clinician-Engelberg
‘Quality of Communication with Family’