Patient measures and timing of administration
| Timing of administration | |||||
|---|---|---|---|---|---|
| Domain | Measurement tool | Validated | Base line | After first conversation or 2 months after enrolment | Every 2 months |
| Demographics | ✓ | ✓ | |||
| Patient acceptability | ‘Patient Acceptability’ | ✓ | |||
| Quality of life | SF-12 | ✓ | ✓ | ✓ | ✓ |
| Peacefulness | PEACE Questionnaire | ✓ | ✓ | ✓ | ✓ |
| Life priorities | Purpose designed | ✓ | ✓ | ||
| Goals of treatment | Dichotomized choice question from SUPPORT study | ✓ | ✓ | ✓ | ✓ |
| Therapeutic alliance | Modified Human Connection Scale | ✓ | ✓ | ✓ | ✓ |
| Anxiety | Generalized Anxiety Disorder (GAD 7) | ✓ | ✓ | ✓ | ✓ |
| Depression | Patient Health Questionnaire (PHQ-9) | ✓ | ✓ | ✓ | ✓ |
| Quality of communication | Quality of Communication with Clinician-Engelberg | ✓ | ✓ | ✓ | ✓ |
| ‘Quality of Communication with Family’ | ✓ | ✓ | ✓ | ||