Baseline characteristics
| Variable | Completed 1st paediatric visit (n=50) | Completed at least 1 adult visit (n=36) | Did not complete an adult visit (n=11)*† |
|---|---|---|---|
| Female gender | 29 (58%) | 19 (53%) | 7 (64%) |
| Age, year | 17.9 (0.9) [15.8–21.3] | 18.0 (1.0) [15.8–21.3] | 17.7 (0.5) [16.9–18.8] |
| Health conditions | |||
| Neurodevelopmental‡ | 19 (38%) | 14 (39%) | 5 (46%) |
| Other chronic§ | 31 (62%) | 22 (61%) | 6 (54%) |
| Highest education | |||
| Secondary | 36 (72%) | 25 (69%) | 8 (73%) |
| Postsecondary | 13 (26%) | 10 (28%) | 3 (27%) |
| Literacy course | 1 (2%) | 1 (3%) | 0 |
| Living arrangements | |||
| In family's home | 45 (90%) | 33 (92%) | 9 (82%) |
| On one's own | 1 (2%) | 0 | 1 (9%) |
| On one's own with support from community resources | 3 (6%) | 3 (8%) | 0 |
| Missing | 1 (2%) | 0 | 1 (9%) |
Values are n (%), or mean (SD) [range].
*Not including three individuals who were still waiting for their first adult appointment at the study closeout at the second site.
†There was no difference between the groups (ie, 11 participants who did not complete and 36 participants who completed the follow-up) in terms of gender, education and age (p=0.7; p=1.0 and p=0.06, respectively). The online supplementary file provides further information on the group that did not complete the follow-up.
‡Neurodevelopmental conditions included cerebral palsy, spina bifida, hydrocephalus, acquired brain injury, and epilepsy.
§Other chronic conditions included Crohn's disease, ulcerative colitis, dyslipidemia, hypothyroidism, multiple endocrine neoplasia, adrenal insufficiency, anorexia, Wegener’s granulomatosis, kidney disease (transplant), heart disease (pacemaker), lupus, osteogenesis imperfecta, Klippel-Trenaunay syndrome and tuberous sclerosis.