Study parameters, instruments and interviewee
| Parameter and instrument | Interviewee | ||
|---|---|---|---|
| Person with ID | Group leader* | Key carer† | |
| Level of intellectual disability (ID) | |||
| Intellectual Disability Level Assessment Sheet7 | X | X | |
| Psychiatric symptomatology | |||
| Psychiatric Assessment Schedule for Adults with Developmental Disability Checklist (PAS-ADD Checklist)10 | X | X | |
| Mini PAS-ADD11 | X | X | |
| Problem behaviour | |||
| Aberrant Behavior Checklist-Community (ABC-C)12 | X | X | |
| Needs | |||
| Camberwell Assessment of Need for Adults with Developmental and Intellectual Disabilities (CANDID)13 | X | X | X |
| Quality of life—adult with ID | |||
| WHO Quality of Life Questionnaire; Short Version (WHOQOL-BREF)14; Disability Module (WHOQOL-Dis)15 16 | X | X | |
| WHO Quality of Life Questionnaire; Easy Read Short Version (WHOQOL-BREF-ERV) Disability Module—Easy Read Version (WHOQOL-Dis-ERV) | X | ||
| Health services utilisation and costs | |||
| Client Socio-Demographic and Service Receipt Inventory (CSSRI)17 | X | X | |
| Related caregiver burden and costs for care | |||
| Involvement Evaluation Questionnaire (IEQ)18 19 | X | ||
| Financial Burden Family Sheet20 | |||
| Quality of life—related caregiver | |||
| WHO Quality of Life Questionnaire (WHOQOL-BREF)14 | X | ||
| Empowerment | |||
| Empowerment Scale—Easy Read Version21 | X | ||
| Mental healthcare provision | |||
| Open questions | X | X | X |
*Group leader in the sheltered workshop.
†Key carer (related caregiver or staff in the sheltered housing institution).