Table 1

Characteristics of participants

Children/young peopleParents
Sex
 Male/female34/2033/20
Age of child
 Range (mean; SD) in years8–25 (16.5; 4.1)4–23 (11.6; 4.4)
IMD quintiles
 1 (less deprived areas)78
 2134
 392
 475
 5 (more deprived areas)616
 Missing1218
Ethnicity
 African02
 African + white British11
 Asian UK/Other11
 Black UK02
 Indian20
 White British4128
 White Irish02
 White Irish + Brazilian01
 White other20
 Other (not detailed)02
 Missing714
Neurological diagnosis
 Acquired brain injury02
 ADHD10
 ADHD/ASD01
 ASD1613
 Awaiting diagnosis20
 Cerebral palsy918
 Developmental delay13
 Down syndrome16
 Duchene muscular dystrophy50
 Learning disability34
 Syndrome65
 Missing101
DLA CC)
 Higher rate1636
 Middle rate1011
 Lower rate30
 None20
 Missing236
DLA MC
 Higher rate1629
 Lower rate918
 None20
 Missing2710
  • ADHD, attention–deficit hyperactivity disorder; ASD, autistic spectrum disorder; DLA CC, disability living allowance care component; DLA MC, disability living allowance mobility component; IMD, Index of Multiple Deprivation 2010 (a measure of deprivation experienced by people living in an area).