Table 1

Participant characteristics

Participant	Gender	Timing of interview*	Nominated carer interviewed	Gender of carer	Timing of carer interview*	Number of children under 18	Home structure	Immigration status	Nominated healthcare professional	Timing of healthcare professional interviews*
P1	M	Stage 1†–2 Deceased	Spouse	F	Stage 1† Postbereavement	3–4	Nuclear family	Asylum seeker	Social worker Palliative care specialist	Stages 1, 2 and postbereavement
P2	M	Stage 1 Deceased	Spouse	F	Stage 1†	1–2	Nuclear family	UK citizen	General practitioner	Stage 1 Postbereavement
P3	F	Stages 1, 2 and 3	None	NA	NA	2–3	Nuclear family	UK citizen	Oncologist	Stages 1–3
P4	F	Stages 1, 2 and 3	Spouse	M	Declined	2–3	Nuclear family	UK citizen	Occupational therapist	Stage 1
	F	Stage 1†, 2 and 3	Spouse	M	Stage 1†	3–4	Nuclear family	UK citizen	Social worker	Stage 1
P13	M	Stages 1†, 2† and 3†	Spouse	F	Stages 1†, 2† and 3†	3–4	Nuclear family	UK citizen	Oncologist	Stage 3
P20	M	Stage 1† Deceased	Spouse	F	Stage 1† Postbereavement	4–5	Nuclear family	UK citizen	Palliative care nurse specialist	Stage 1
P25	F	Stages 1, 2 and 3	None	NA	NA	2–4	Nuclear family	UK citizen	General practitioner	Stage 2

*Joint patient/carer interview; **stage 1=first interview; stage 2=8 months after first interview; stage 3=12 months after second interview. Adapted from Worth et al.³¹
F, female; M, male; NA, not applicable.