TableĀ 1

Coping-Together booklet content

Booklet titleDescriptionExample ChallengesExample coping strategies
Getting What You Need From Your Health Care TeamWorking with your medical team, knowing how to ask the right questions, getting and understanding the information you needWe don't know what questions to ask
We leave our appointments feeling we didn't get what we wanted
Use question checklists
Prepare for appointments, communicate assertively and use other methods of communication
Making Your Treatment DecisionConsidering your options, treatment planning and adjusting to treatment-related delaysWe feel overwhelmed by options
We want more of a say in the decision
Identify what is most important to you, talk to your healthcare team and use decision aids
Use assertive communication and consider a second opinion
Getting on Top of SymptomsCoping with common treatment side effectsFatigue
Pain
Use a symptom diary, talk to your healthcare team and use self-care strategies
Dealing with Stress and WorryAddressing the emotional reactions to diagnosis and treatmentI feel sad, down and/or isolated
I'm having difficulties sleeping
Do pleasant activities and connect with others
Practice good sleep hygiene throughout the day
Supporting Each OtherEnhancing your communication and connection to your partner, and adjusting to changes that may arise in your relationshipI just don't know how to make my partner feel better
I'm stressed by changes in my roles and responsibilities
Use listening skills, body language and empathy, avoid roadblocks to listening well
Negotiate changes in roles and responsibilities and accept offers of help from others
Getting the Support You NeedFinding appropriate support to address practical, emotional, financial, legal and informational needsWe need more information
We need legal help
Identify your information needs, identify the right source of information, check the information credibility and manage information overload
Identify the legal issues you need addressed and find a service that is right for you