Table 1

Recruitment and retention

BSABWTotal
Patient participation
 Total consented179329508
 Consented/completed Q194185279
 Completed Q256144200
 Completed Q332117149
 Retained in study from consent until completion of study (%)346353.4
Reasons for withdrawal from study
 Consented but did not complete a questionnaires8551136
 Died538
 Returned to country of origin505
 Family member reversed consent of patient808
 Patient verbally withdrew12 (14.1%)12 (23.5%)24
 Avoidant behaviour55 (64%)0 (0%)55
 Lost to follow-up (excluding travel abroad)02929
 Not interested in research subject022
 Already involved in another study055
  • BSA, British South Asian; BW, British White.