Responses
Rank | Q | 4 or higher | 3 | 2 or lower | Missing | Question | ||||
---|---|---|---|---|---|---|---|---|---|---|
n | % | n | % | n | % | n | % | |||
1 | 16 | 314 | 92.9 | 10 | 3.0 | 8 | 2.4 | 6 | 1.8 | Psychological and psychosocial support from those specialising in the care of teenagers and young adults. |
2 | 14 | 314 | 92.9 | 11 | 3.3 | 8 | 2.4 | 5 | 1.5 | Contact with a nurse specialising in the care of teenagers and young adults. |
3 | 13 | 303 | 89.6 | 18 | 5.3 | 13 | 3.8 | 4 | 1.2 | Treatment in an age-appropriate environment. |
4 | 1 | 289 | 85.5 | 32 | 9.5 | 13 | 3.8 | 4 | 1.2 | Treatment by a site-specific surgical or medical team. |
5 | 12 | 286 | 84.6 | 34 | 10.1 | 13 | 3.8 | 5 | 1.5 | Access to age-appropriate clinical trials. |
6 | 21 | 285 | 84.3 | 32 | 9.5 | 18 | 5.3 | 3 | 0.9 | Contact with peers who have undergone or are undergoing similar treatments or who have been diagnosed with the same illness. |
7 | 6 | 285 | 84.3 | 38 | 11.2 | 10 | 3.0 | 5 | 1.5 | Regular follow-up by a site-specific MDT. |
8 | 5 | 285 | 84.3 | 40 | 11.8 | 6 | 1.8 | 7 | 2.1 | Contact with a site-specific clinical nurse specialist or Macmillan nurse. |
9 | 3 | 284 | 84.0 | 39 | 11.5 | 12 | 3.6 | 3 | 0.9 | Access to site-specific clinical trials. |
10 | 2 | 282 | 83.4 | 39 | 11.5 | 13 | 3.8 | 4 | 1.2 | Diagnostics and staging by site-specialist clinical teams (radiology, pathology, etc) |
11 | 10 | 256 | 75.7 | 44 | 13.0 | 34 | 10.1 | 4 | 1.2 | Treatment by a medical or surgical team who specialise in the treatment and care of teenagers and young adults. |
12 | 15 | 236 | 69.8 | 57 | 16.9 | 39 | 11.5 | 6 | 1.8 | Regular follow-up by an age-specific MDT. |
13 | 19 | 230 | 68.0 | 74 | 21.9 | 27 | 8.0 | 7 | 2.1 | Treatment at a high volume cancer centre. |
14 | 11 | 195 | 57.7 | 86 | 25.4 | 52 | 15.4 | 5 | 1.5 | Diagnostics and staging by clinical teams specialising in the care of teenagers and young adults (radiology, pathology, etc). |
15 | 7 | 194 | 57.4 | 10 | 3.0 | 6 | 1.8 | 128 | 37.9 | Psychological and psychosocial support from those specialising in the care of persons with cancer. |
16 | 26 | 192 | 56.8 | 10 | 3.0 | 3 | 0.9 | 133 | 39.3 | Access to fertility specialists and advice on reproductive issues. |
17 | 17 | 188 | 55.6 | 12 | 3.6 | 5 | 1.5 | 133 | 39.3 | Access to age-appropriate palliative care if needed. |
18 | 24 | 186 | 55.0 | 16 | 4.7 | 4 | 1.2 | 132 | 39.1 | Support for family friends and partners of the patient. |
19 | 18 | 184 | 54.4 | 15 | 4.4 | 7 | 2.1 | 132 | 39.1 | Access to age-appropriate end of treatment care and support and information on late effects of treatment. |
20 | 23 | 183 | 54.1 | 18 | 5.3 | 5 | 1.5 | 132 | 39.1 | Educational and employment support during and after treatment. |
21 | 27 | 179 | 53.0 | 17 | 5.0 | 9 | 2.7 | 133 | 39.3 | Ability to stay in contact with peers when in hospital, Facebook, email text messages, etc |
22 | 9 | 168 | 49.7 | 28 | 8.3 | 13 | 3.8 | 129 | 38.2 | Access to site-specific end of treatment care and support and information on late effects of treatment. |
23 | 25 | 167 | 49.4 | 30 | 8.9 | 10 | 3.0 | 131 | 38.8 | Treatment by the same team throughout. |
24 | 8 | 160 | 47.3 | 30 | 8.9 | 17 | 5.0 | 131 | 38.8 | Access to site-specific palliative care if needed. |
25 | 22 | 141 | 41.7 | 43 | 12.7 | 22 | 6.5 | 132 | 39.1 | Outpatient appointments held in an age-appropriate environment. |
26 | 20 | 129 | 38.2 | 116 | 34.3 | 86 | 25.4 | 7 | 2.1 | Treatment at a hospital in close proximity to a patient's home address. |
27 | 4 | 114 | 33.7 | 90 | 26.6 | 128 | 37.9 | 6 | 1.8 | Inpatient treatment on a site-specific ward (eg, breast). |
MDT,multidisciplinary team.