Description of Phase II participants’ characteristics (N=712)
| Variables in GPRI* | ||
|---|---|---|
| Age in years: mean (SD) | 49.80 (±12.53), range 18–80, median 50.00 | |
| Gender: n (%) | Male | 85 (12%) |
| Female | 627 (88%) | |
| Type of AOHD being tested: n (%) | Cancer (BRCA) | 580 (82%) |
| Cancer (other, ie, Colon) | 90 (13%) | |
| Huntington disease | 31 (4%) | |
| Haemochromatosis | 5 (1%) | |
| Personal history of disease being tested: n (%) | 441 (62%) | |
| Recent significant event (diagnosis of or loss of significant others to the disease being tested): n (%) | 333 (47%) | |
| Disease worries affect daily mood (strongly agree or somewhat agree): n (%) | 189 (27%) | |
| Sad in the past month (often or almost all the time): n (%) | 121 (17%) | |
| Anxious in the past month (often or almost all the time) n (%) | 121 (17%) |
*Note: there are missing data for some GPRI variables. The total count for each variable does not necessarily add up to 712.
AOHD, Adult-Onset Hereditary Disease; GPRI, Genetic Psychosocial Risk Instrument.