Demographic characteristics of interview participants
| Adults living with conditions that have the potential to affect capacity and/or communication | Gatekeepers, supporters or practitioners | REC members | Researchers | |
| Gender—male | 26 | 6 | 2 | |
| Gender—female | 12 | 6 | 2 | 6 |
| Gender not recorded | 1 | |||
| Age 18–24 | 5 | |||
| Age 25–34 | 4 | 1 | 4 | |
| Age 35–44 | 3 | |||
| Age 45–54 | 8 | 3 | 2 | |
| Age 55–64 | 6 | 1 | 3 | 2 |
| Age 65–74 | 2 | 1 | ||
| Age 75 or over | 3 | 1 | ||
| Age not recorded | 8 | 1 | 3 | |
| Ethnicity White—English/Welsh/Scottish/Northern Irish/British | 32 | |||
| Ethnicity Black/African/Caribbean/Black British—Caribbean | 2 | |||
| Ethnicity Black/African/Caribbean/Black British—African | 2 | |||
| Ethnicity British Mixed/multiple ethnic group | 1 | |||
| Ethnicity not recorded | 2 | 6 | 8 | 8 |
| Total | 39 | 6 | 8 | 8 |
REC, research ethics committee.