Sections | Example variables | Digital care records | Health and social care datasets | |
1 | Demographics/characteristics | Date of birth; sex; NHS no; area-based deprivation | No | Personal demographics service |
Religion, languages, marital or partnership status, deprivation of liberty | Yes | No | ||
Ethnicity; weight; height | Yes | GP data; secondary user services data | ||
2 | Palliative care needs | End of life pathway register | No | GP data |
3 | Care home stay | Date of entry to care home; date of death | Yes | No |
4 | Resident needs | Skin condition | Yes | No |
Cognitive impairment and impact on perception, understanding and need for support | Yes* | GP data; secondary user services data | ||
Oral/nutritional status | No | Secondary user services data | ||
Continence | No | Community datasets (where available) | ||
Ability to perform activities of daily living; cognitive performance; delirium | Yes* | No | ||
5 | Quality of life | Outcomes; mood; dementia quality of life | Yes* | No |
6 | Complications/ adverse events | Infections | Yes | GP data; secondary user services data |
Falls (leading to hospital admission or GP visit) | Yes | Secondary user services data; 999 data; ambulance data | ||
Falls (only captured at care home level); early warning score; unintended weight loss | Yes | No | ||
7 | Diagnoses | Medical history | No | Secondary user services data; GP data |
Frailty | No | GP data | ||
Adverse reactions and allergies | No | GP data | ||
8 | Medication and vaccination | Prescribed medication and administered vaccines | No | GP data |
9 | Healthcare utilisation | Primary care use | No | GP data; NHS 111 data; 999 data |
Community nursing; community allied health professionals | No | Community services data set | ||
Out-of-hours contacts | No | GP out-of-hours data | ||
Ambulance call-outs | No | Ambulance data | ||
Accident and Emergency (A&E) attendance; emergency admissions; secondary care usage (outpatient appointments and elective admission) | No | Secondary user services data | ||
10 | Care home characteristics and workforce characteristics | Type of home; care home characteristics, specialities and client groups; location of care home; area-based deprivation; registered bed capacity; sector of provider; provider ownership type; CQC rating | No | CQC data |
Staffing model; staffing ratios; numbers and types of staff; no of agency staff; no and type of vacancies | No† | Skills for care data |
*Will be added to the software for the purposes of the pilot study.
†As the Skills for Care workforce survey is voluntary, we will ask participating homes to provide some information on workforce as part of a short online survey for the pilot.
CQC, Care Quality Commission; GP, general practitioner; MDS, minimum data set; NHS, National Health Service.