Characteristics of data in the registry periods for registry countries
Country | Year registry established | Surgeries reported | Management and participation | Validation and completeness | Reporting style | Source |
Included registries | ||||||
Sweden | Knee: 1975 Hip: 1979 | Hip and knee replacements; knee osteotomy. | MGT: medical society. Both registries managed separately. Participation: voluntary | Validation: yes and continuous. Completeness: primary, 97%; revision, 92%. PROM: 82% | Annual; all-electronic online statistics for knee available; periodic update online. | 5 30 |
Finland | 1980 | Hip and knee replacements. | MGT: managed by the government since 1993. Participation: mandatory | Validation: yes and continuous. Completeness: primary, 95%; revision, 82%. | Updated daily; all-electronic online report available. | 38 |
Norway | Hip: 1987. Other joints started in 1994. Cruciate ligament: 2004 Hip fracture: 2005 Paediatric hip: 2010 | Four-in-one register: joint replacements; hip fracture; cruciate ligament; and paediatric hip | MGT: Norwegian orthopaedic association. Participation: voluntary | Validation: yes and continuous. Completeness: hip: 93% knee: 91% PROM data collection recently initiated. | Annual; updated periodically. Electronic recording surgeon form recently developed for Cruciate ligament registry; also, electronic recording of other procedures available. | 39 |
Denmark | Hip: 1995 Knee: 1997 | Hip and knee replacements. | MGT: orthopaedic society. Participation: voluntary | Validation: yes and continuous. Completeness: 94% | Annual; updated periodically; annual report in Danish | 40 41 |
Australia | 1999 | Hip, knee and shoulder replacements. | MGT: orthopaedic society. Funded by the government. Participation: voluntary | Validation: yes and continuous. Completeness: 97.8% PROM data collection ongoing. | Annual; periodic reporting; online data collection forms. | 1 |
New Zealand | 1999 | Hip, knee, shoulder, ankle, elbow, lumbar and cervical disc replacements | MGT: orthopaedic society. Participation: voluntary | Validation: yes and continuous. Completeness: >90% PROM data collection: 70% | Annual; periodic reporting; online data collection forms. | 8 |
England/Wales | 2003 | Hip, knee, shoulder, ankle and elbow replacements. | MGT: government Participation: voluntary | Validation: yes and continuous. Completeness: 96% PROM data: 94% | Annual; periodic update of the registry online. Statistics of procedures updated online | 7 |
Romania | 2001 | Hip and knee replacements; spine and cruciate ligament surgery. | MGT: government Participation: mandatory | Validation: yes and continuous. Completeness: >99% | Annual; monthly update online; statistics updated online | 6 |
Slovakia | Hip: 2003 Knee: 2006 | Hip and knee replacements. | MGT: government Participation: voluntary | Validation: yes and continuous. Completeness: 100% | Annual; periodic update of the registry online. Statistics of procedures updated online | 42 |
Italy | 2006 | Hip, knee and shoulder replacements | MGT: government Participation: voluntary. Legal process ongoing to make participation mandatory | Validation: yes and continuous. Completeness: 66% | Annual reporting | 18 |
France | 2006 | Hip replacement | MGT: SOFCOT Participation: voluntary | Validation: yes and continuous. | Biennial reporting | 43 |
USA | 2012 | Hip and knee replacements. | MGT: orthopaedic society. Participation: voluntary | Validation: yes and continuous. Completeness: 86% PROM data collection: 20% and ongoing | Annual | 2 |
MGT, management; PROM, patient-reported outcome measure; SOFCOT, French Society of Orthopaedics and Traumatology.