First author, year | Country | Sample size (caregivers of individuals with Parkinsonism) | % female | Caregiver mean age (SD) | Relationship to care recipient N | Care recipients’ condition | Frequency of caregiving | Duration of caregiving: mean (SD) |
Bartolomei, 201830 | Italy | 55 | 64 | 62.0 (12.0) | Spouse (n=47) Offspring (n=8) | Parkinson’s disease | Not reported | Not reported |
Cifu, 200636 | USA | 49 | 98 | 70.0 (9.9) | Wife (n=40) Offspring (n=4) Daughter-in-law (n=1) Significant other (n=3) Friend (n=1) | Parkinsonism | Not reported | Not reported |
Cupidi, 201248 | Italy | 40 | 70 | 64.2 (9.4) | Spouse (n=36) Offspring (n=4) | Parkinson’s disease | Not reported | Not reported |
Hand, 202137 | UK | 115 | 66 | 70.7 (9.7) | Spouse (n=98) Offspring/daughter-in-law (n=12) Sister (n=3) Friend (n=2) | IPD PDD HY stage II–V CBD MSA PSP | Not reported | Not reported |
Happe, 200238 | Germany | 101 | 63 | 62.3 (10.0) | Partner/spouse (n=101) | Parkinson’s disease | Never/not necessary: 53%, regularly, not daily: 16%, daily: 53% | Not reported |
Hermanowicz, 201939 | USA | 357 | Not reported | Not reported | Not reported | Parkinson’s disease | Not reported | Not reported |
Hicks, 201940 | USA | 18 | 50 | 62.2 (10.4) | Spouse (n=16) Friend (n=2) | Parkinson’s disease | Not reported | Not reported |
Lee, 202041 | Taiwan | 162 | 67 | 59.1 (12.5) | Spouse (n=122) Offspring (n=30) Parent/sibling/friend (n=10) | Parkinson’s disease | Not reported | 7.7 years |
Liu, 201833 | China | 36 | 67 | 61.3 (11.1) | Spouse (n=21) Offspring (n=15) | Dementia with Lewy bodies | Not reported | Not reported |
Lökk, 200842 | Sweden | 404 | 62 | 68.5 (9.4) | Spouse (n=396) Not reported (n=8) | Parkinson’s disease | Not reported | Not reported |
Olsson, 201629 | Sweden | 66 | 70 | 69.9 (8.2) | Spouse (n=63) Offspring (n=1) Other (n=2) | Parkinson’s disease | 22.5 hours (weekly) | 3.0 years (median) |
Ozdilek, 201243 | Turkey | 50 | 78 | 56.6 (13.2) | Spouse (n=37) Offspring (n=11) Sibling (n=2) | Parkinson’s disease | 10.0 hours (daily) | 26.0 months |
Pal, 200444 | Not reported | 23 | 65 | 65.2 (11.3) | Spouse (n=23) | Parkinson’s disease | Not reported | Not reported |
Perez, 202045 | USA & Mexico | 253 | 73 | 59.9 (14.7) | Not reported | Parkinson’s disease | 87.9 hours (weekly) | 50.1 months |
Smith, 199749 | Germany | 153 | 78 | 64.0 (11.0) | Spouse (n=153) | Parkinson’s disease | Not reported | Not reported |
Teel, 199950 | USA | 29 | 52 | 73.0 (not reported) | Spouse (n=29) | Parkinson’s disease | 10.1 hours (daily) | 5.1 years |
Thommessen, 2002 46 | Norway | 58 | Not reported | Not reported | Spouse (n=58) | Parkinson’s disease | Not reported | Not reported |
Wade, 202047 | Australia | 29 | 62 | 69.0 (5.9) | Spouse (n=29) | Parkinson’s disease | Not reported | Not reported |
CBD, corticobasal degeneration; HY, Hoehn and Yahr; IPD, idiopathic Parkinson's disease; MSA, multiple systems atrophy; PDD, Parkinson's disease dementia; PSP, progressive supranuclear palsy.