Task to be performed by the interested researcher | Support provided by the steering committee* | Type of requirement | Expected date for the task to be completed† |
Apply for and obtain ethical approval by an appropriate local institutional review board | Ethical application and letter of ethical approval by Utrecht University | Compulsory | As soon as possible after the steering committee approves participation |
Meeting(s) with patients or healthcare providers to include a variable of interest for networks models of pain or fatigue. | Examples of questions and minutes from previous meetings | Strongly advised | Meeting(s) are carried out in months 2 and 3 |
Transcultural (forward–backward) translation process45 of the survey | Written directions explaining the procedure | Compulsory | Months 4 and 5 |
Corroboration that the electronic implementation of the survey as completed by the steering committee is correct | Electronic implementation of the survey and storage of the data, expenses are covered by the funder of the study | Compulsory | Month 6 |
Circulation of the link to the electronic survey via patients associations and, if possible, other complementary ways such as healthcare providers | Examples of successful experiences and approaches followed in other countries | Compulsory | Month 7 to month 19 |
Provide feedback in at least a scientific manuscript led by members of the steering committee | Members of the steering committee write at least two scientific manuscripts on the network models for fatigue and pain | Advised | To be agreed |
Prepare a communication to a conference or led a scientific manuscript | The specific support will depend on the needs of the local researcher (eg, statistical support) | Not required | To be agreed |
To disseminate the findings of the project to policymakers, healthcare providers, people with rheumatic and musculoskeletal diseases or other sections of society | Examples of successful experiences. Additional support will be offered depending on the needs of the local researcher | Strongly advised | From month 20 until a date to be agreed |
Applications for obtaining additional funding for addressing new questions | The specific support will depend on the needs of the local researcher (eg, identifying potential calls) | Not required | To be agreed |
*All the materials will be provided in the English language.
†The expected date is indicated in months after the ethical approval has been obtained.