Table 1

Demographic and clinical characteristics of children interviewed

Variablen (%)*
Age at glaucoma diagnosis, years (median (range))0.5 (0–15)
Time since diagnosis, years (median (IQR))9.8 (7.3–13.6)
Age at interview (years)
 8–1210 (56)
 13–178 (44)
Gender, female6 (33)
Laterality of glaucoma, bilateral11 (61)
Self-reported ancestry, European16 (89)
Subtype of childhood glaucoma
 Primary congenital glaucoma12 (67)
 Glaucoma associated with non-acquired ocular anomalies
  Aniridia1 (6)
  Axenfeld-Rieger syndrome1 (6)
 Glaucoma associated with non-acquired systemic condition
  Sturge-Weber syndrome1 (6)
 Glaucoma associated with an acquired condition
  Idiopathic uveitis†2 (11)
 Glaucoma following cataract surgery1 (6)
Number of topical antiglaucoma medications currently using
 013 (72)
 ≥15 (28)
Intraocular pressure at last ophthalmic appointment, mm Hg (median (range))18 (14–25)
Time since last ophthalmic appointment, months (median (IQR))3.8 (2.9–7.4)
Number of surgical interventions per child (median (IQR))2 (2–4)
Time since last ophthalmic surgical intervention, years (median (IQR))6.7 (1.6–13.6)
Disease complications
 Corneal disease1 (6)
 Cataract4 (22)
Molecular diagnosis identified9 (50)
 Autosomal recessive inheritance2 (11)
 Autosomal dominant inheritance7 (39)
Vision categoryBCVA
(logMAR)
Better eye
BCVA
(n, %)
Worse eye
BCVA
(n, %)
No vision impairment≥0.315 (83)8 (44)
Mild vision impairment<0.3–≥0.51 (6)4 (22)
Moderate vision impairment<0.5–≥1.01 (6)2 (11)
Severe vision impairment or blindness<1.0–≥1.30 (0)1 (6)
Blindness<1.3–CF1 (6)2 (11)
HM or LP0 (0)1 (6)
NLP0 (0)0 (0)
  • *n (%) presented unless otherwise specified.

  • †No underlying systemic disease was diagnosed.

  • BCVA, best-corrected visual acuity; CF, count fingers; HM, hand movements; LP, light perception; NLP, no light perception.