Table 3

Description of study scales

Spiritual well-being scaleThe FACIT Spiritual Well-Being Scale is a brief self-report measure designed to assess an individual’s spiritual well-being with two sub-scales: spirituality and meaning/peace,68 69
Depression and anxietyThe Hospital Anxiety and Depression Scale (HADS),70–72
HopelessnessThe Beck Hopelessness Scale (BHS) comprises 20 true/false questions that assess the degree of hopelessness,73 74
Quality of lifeThe Functional Assessment of Cancer Therapy-General (FACT-G) will assess the participants' quality of life,75
Family relationship
Family communication
Family Relationship Index will measure cohesiveness, conflict, and expressiveness among family members,76
Holding Back subscale (HBS) of the Emotional Disclosure Scale is a 10-item measure assessing the degree to which individuals hold back from talking with their partner/caregiver about cancer-related concerns,77–80
BurdenZarit Burden Interview (ZBI) is a 22 item, 5-point Likert scale (never=0, nearly always=4) used widely to assess caregiver burden81–83
FatalismFatalism will be measured with the Mental Adjustment to Cancer Scale, which assesses cognitive responses to cancer in five dimensions, including fatalism,84
ReligiosityThe Age Universal I/E scale will measure intrinsic and extrinsic religiosity,85 86
DistressNCCN Distress Thermometer and Problem List is a rapid screening tool for assessing psychological distress in people affected by cancer,87 88