The most frequently recorded ICD-10 codes for cancer-related underlying causes of death in adults with intellectual disabilities for whom official cause of death coding from NHS Digital indicated cancer as their underlying cause of death (group 3), compared with data reported for the general population of England
| ICD-10 codes | Neoplasm of… | LeDeR data (2017–2019) (age 18+ years) | General population (2018) (age 20+ years)† | ||||||||||
| Male | Female | Total* | Male | Female | Total | ||||||||
| No. | % | No. | % | No. | % | No. | % | No. | % | No. | % | ||
| C15–C26 | Digestive organs | 191 | 42% | 117 | 30% | 309 | 36% | 23 297 | 32% | 15 953 | 26% | 39 250 | 29% |
| C76–C80 | Ill-defined, other secondary and unspecified sites | 53 | 12% | 32 | 8% | 85 | 10% | 4003 | 6% | 4448 | 7% | 8451 | 6% |
| C30–C39 | Respiratory and intrathoracic organs | 46 | 10% | 23 | 6% | 69 | 8% | 15 708 | 22% | 12 910 | 21% | 28 618 | 21% |
| C50 | Breast | § | § | 67 | 17% | 69 | 8% | 78 | <1% | 9562 | 15% | 9640 | 7% |
| C81–C96; C42 | Lymphoid, haematopoietic and related tissue | 37 | 8% | 27 | 7% | 64 | 8% | 3799 | 5% | 3233 | 5% | 7032 | 5% |
| C51–C58 | Female genital organs | 60 | 15% | 60 | 7% | 6818 | 11% | 6818 | 5% | ||||
| C64–C68 | Urinary tract | 32 | 7% | 18 | 5% | 50 | 6% | 5492 | 8% | 2844 | 5% | 8336 | 6% |
| C69–C72 | Eye, brain and other central nervous system | 24 | 5% | 12 | 3% | 36 | 4% | 2200 | 3% | 1603 | 3% | 3803 | 3% |
| C60–C63 | Male genital organs | 34 | 7% | 34 | 4% | 10 243 | 14% | 10 243 | 8% | ||||
| C43–C44 | Melanoma and other skin | 17 | 4% | 13 | 3% | 30 | 4% | 1671 | 2% | 1007 | 2% | 2678 | 2% |
| C00–14; C40–41; C45–49; C73–75; D00–09; D10–36; D37–48. | All other causes | 22 | 5% | 24 | 6% | 46 | 5% | 5935 | 8% | 3691 | 5% | 9626 | 8% |
| Total | 458 | 100% | 393 | 100% | 852 | 100% | 72 426 | 100% | 62 069 | 100% | 134 495 | 100% | |
*There is one person whose gender was not recorded. They have been included in the Total column.
†Data extracted from https://www.gov.uk/government/statistics/cancer-registration-statistics-cancer-mortality-in-england-2018.
‡Numbers fewer than 10 have been suppressed.
ICD-10, 10th edition of the International Classification of Diseases; LeDeR, Learning (Intellectual) Disabilities Mortality Review.