Participant characteristics
| Characteristic | Mean (SD) (range) | n | % |
| Age | 65.63 (9.88) (48–83) | 16 | |
| Gender | |||
| Female | 9 | 56.3 | |
| Ethnicity | |||
| White British/European | 15 | 93.8 | |
| Asian/Asian British | 1 | 6.3 | |
| Marital status | |||
| Married | 10 | 62.5 | |
| Cohabiting | 2 | 12.5 | |
| Separated/divorced | 2 | 12.5 | |
| Never married/single | 2 | 12.5 | |
| Relationship to person with dementia | |||
| Spouse/partner | 10 | 62.5 | |
| Son/daughter | 6 | 37.5 | |
| Currently employed | |||
| Yes | 4 | 25.0 | |
| Current/last occupation | |||
| Managers/directors/officials | 3 | 18.8 | |
| Professional | 3 | 18.8 | |
| Associate professional/technical | 2 | 12.5 | |
| Administrative/secretarial | 5 | 31.3 | |
| Skilled trades | 2 | 12.5 | |
| Caring/leisure/service | 1 | 6.3 | |
| Geographical location | |||
| Urban | 1 | 6.3 | |
| Rural | 7 | 43.8 | |
| Suburbs | 8 | 50.0 | |
| Person with dementia | |||
| Type of dementia | |||
| Alzheimer’s disease | 4 | 25.0 | |
| Vascular dementia | 3 | 18.8 | |
| Early onset Alzheimer’s disease | 2 | 12.5 | |
| Mixed | 7 | 43.8 | |
| Residence | |||
| Coresident with carer | 8 | 50.0 | |
| Non-resident | 8 | 50.0 | |
| Person with dementia | |||
| Community dwelling | 12 | 75.0 | |
| Care home resident | 4 | 25.0 | |
| Time since diagnosis | 3.4 years (2.20) (1.1–7.5) | ||
| Less than 1 year | 0 | 0.0 | |
| Between 1 and 3 years | 9 | 56.3 | |
| Between 3 and 5 years | 2 | 12.5 | |
| Over 5 years | 5 | 31.3 | |