Outcomes and their respective source
| Outcome | Source |
| Primary | |
| Patient-reported disease control | Patient-reported (IBD-Control)36 37 |
| Secondary | |
| IBD-attributable mortality | Chart review |
| Clinical remission | Chart review |
| Endoscopic/radiologic remission | Chart review |
| Colorectal cancer | Chart review |
| Complications of IBD treatment | Chart review |
| Biochemical remission | Medical record |
| Anaemia | Medical record |
| A&E visits | Medical record |
| Hospital admissions | Medical record |
| Long-term steroid use | Medical record |
| Hospital costs | Medical record and Dutch reference prices52 |
| Fistulae symptoms | Patient-reported |
| BMI | Patient-reported |
| Patient-reported remission | Patient-reported (MIBDI)38 |
| Generic quality of life | Patient-reported (PROMIS-GH)39 |
| Patient experience | Patient-reported (Picker)40 |
| Utility | Patient-reported (EQ-5D-5L)43 44 |
| Primary care costs | Patient-reported (iMCQ)45 and Dutch reference prices52 |
| Productivity costs | Patient-reported (iPCQ)57 and Dutch reference prices52 |
| Patient costs | Patient-reported |
IBD, inflammatory bowel disease; iMCQ, iMTA Medical Consumption Questionnaire; iMTA, Institute of Medical Technology Assessment; iPCQ, iMTA Productivity Cost Questionnaire; MIBDI, Manitoba IBD Index; PROMIS-GH, Patient-Reported Outcomes Measurement Information System - Global Health.