Caregiver’s knowledge and support needs
| Participant characteristics | Overall | Women | Men |
| No, n (%) | 226 | 198 (87.6) | 28 (12.4) |
| Prior care provision knowledge regarding the disorder(s) of care receiver: n (no knowledge, %) | 107 (47.3) | 96 (48.5) | 11 (39.3) |
| Prior care provision knowledge in general: n (no knowledge, %) | 125 (55.3) | 108 (54.5) | 17 (60.7) |
| Would you like to receive more professional support with caregiving (medical, social etc): n (yes %) | 167 (73.9) | 143 (72.2) | 24 (85.7) |
| Personal difficulties experienced by caregivers*: n (%) | |||
| Less time for one-self | 191 (84.5) | 169 (85.4) | 22 (78.6) |
| Changes in sleep quality | 128 (56.6) | 114 (57.6) | 14 (50) |
| Changes in relationships with other people | 122 (54) | 110 (55.6) | 12 (42.9) |
| Changes in financial situation | 107 (47.3) | 95 (48) | 12 (42.9) |
| Changes in physical or psychological health | 173 (76.5) | 156 (78.8) | 17 (60.7) |
| Have you searched for caregiving related support*: n (%) | |||
| Have not searched | 79 (35) | 67 (33.8) | 12 (42.9) |
| Yes, searched for financial support | 54 (23.9) | 45 (22.7) | 9 (32.1) |
| Yes, searched for own well-being support | 64 (28.3) | 59 (29.8) | 5 (17.9) |
| Yes, looked for professional support for conducting caregiving tasks | 78 (34.5) | 69 (34.8) | 9 (32.1) |
| Receiving caregiving related support*: n (%) | |||
| Not receiving support | 110 (48.7) | 98 (49.5) | 12 (42.9) |
| Receiving financial support | 76 (33.6) | 68 (34.3) | 8 (28.6) |
| Receiving psychological support | 5 (2.2) | 5 (2.5) | 0 |
| Receiving professional support for caregiving tasks | 27 (11.9) | 22 (11.1) | 5 (17.9) |
| My situation would improve if*: n (%) | |||
| I would receive psychological support | 73 (32.3) | 67 (33.8) | 6 (21.4) |
| I would receive professional caregiving related support | 102 (45.1) | 88 (44.4) | 14 (50) |
| I would receive more respite days | 100 (44.2) | 90 (45.5) | 10 (35.7) |
| I would receive financial support | 105 (46.5) | 87 (43.9) | 18 (64.3) |
| I would receive more information about the care provision and specific disorder | 59 (26.1) | 53 (26.8) | 10 (35.7) |
| I would receive more support from people in my close environment | 59 (26.1) | 56 (28.3) | 3 (10.7) |
| If time spent caregiving would add to the years of working | 125 (55.3) | 109 (55.1) | 16 (57.1) |
*Possible to choose more than one response option.