Table 1

Description of population at baseline screening of children living within IBC in six countries

Population at baselineTotal (n=2926)
Age (%)
Exact date of birth unknown2639 (90.2)
Estimated or known date of birth(n=2926)
0–6 months746 (25.5)
6–12 months245 (8.4)
12–24 months282 (9.6)
24–59 months427 (14.6)
5–18 years1226 (41.9)
Sex (%)(n=2926)
Female1435 (49.0)
Disability (%)(n=2926)
With one or more disabilities739 (25.3)
Common disabilities (%)(n=547)
Autism spectrum disorder9 (1.6)
Cerebral palsy100 (18.2)
Cleft lip/cleft palate7 (1.3)
Cognitive impairment34 (6.2)
Down syndrome15 (2.7)
Hearing loss/deafness8 (1.5)
Heart disease/defect35 (6.4)
HIV/AIDS10 (1.8)
Hydrocephaly16 (2.9)
Microcephaly6 (1.1)
Vision impairment and blindness13 (2.4)
Speech/language delays3 (0.6)
Other291 (53.2)
Birth weight (%)(n=2926)
Birth weight unknown2031 (69.4)
Where birth weight known(n=895)
Birth weight >2.5 kg381 (42.6)
Low birth weight <2.5 kg452 (50.5)
Very low birth weight <1.5 kg55 (6.2)
Extremely low birth weight <1.0 kg7 (0.8)
Birth status (%)(n=2926)
Unknown birth status2229 (76.2)
Where birth status known(n=697)
Where known full term403 (57.8)
Where known premature294 (42.2)
Age at admission(n=2926)
Median age in months (IQR)10 (0.4–71.8)
Time since admission(n=2926)
Median time in months since admission (IQR)20.7 (8.9–49.2)
Exit status(n=2926)
Total no exited1489
Active children1437
Exit status reasons (%)(n=1489)
Family reunification315 (21)
Foster care placement29 (2)
Adoption (domestic)517 (34.7)
Adoption(international)281 (18.9)
Aged out of care82 (5.5)
Transfer to a different centre103 (6.9)
Death40 (2.7)
Other57 (4.1)
Programme closed65 (4.4)
  • IBC, institution-based care.