Discussed practical considerations for using online methods to engage patients in clinical guideline development

Online clinical guideline development

Proposed a model to integrate consumer views and preferences into resource allocation decisions

Consumer, community, engagement, health technology, technology and clinical practice, resource allocation

Summarised the literature regarding the implementation and organisational structures of Patient and Family Advisory Councils in cancer care centres in North America

Patient and family advisory council, cancer care, patient and family centred care

Developed a system-level implementation strategy to enhance inclusion of patient and family advisors in healthcare decision-making

Patient and family decision-making, primary healthcare

Identified and explained the underlying mechanisms and contextual factors that contribute to effective public participation in health policy and planning

Context-mechanism-outcome, context of political commitment

Identified nine evaluation criteria that characterise optimum patient and public involvement in drug resource allocation decisions

Resource allocation, decision-making, consumer and patient participation

Discussed the methodology provided in guidance documents for incorporating patients or representatives and patients’ views in the clinical guideline development process

Clinical guideline development, patient preference, patient views

Investigated the impact of interventions involving patient advisory councils on clinical care outcomes, patient safety and patient satisfaction and the influence of patient advisors on healthcare changes

Patient advisory councils, experience of care, practice improvement

Explored the roles and opportunities for involving patients with rare diseases, families and patient organisations in the lifecycle of an orphan drug

Rare diseases, orphan drugs