Table 1

Data collected

DemographicsAge; gender; living situation; region
Historical dataPrenatal exposure to other substances; family history of FASD; trauma; attachment issues; physical or sexual abuse
Diagnostic criteriaConfirmation of PAE; facial measurements; neurodevelopmental functioning
Diagnostic outcomeFASD with SFF; FASD without SFF; at risk for neurodevelopmental disorder/FASD; no FASD
Associated featuresSleep problems; sensory sensitivities; sensory processing issues; slow processing speed; gender identity issues
Physical health comorbiditiesCongenital malformations; auditory deficit; visual deficit; growth restriction; failure to thrive; microcephaly; neurological conditions; head and neck issues; cleft lip/palate; cardiovascular conditions; respiratory problems; endocrinological condition; musculoskeletal condition; infectious disease
Mental health comorbiditiesIntellectual disability; attention deficit hyperactivity disorder; attachment disorder; developmental coordination disorder; language disorder/impairment; Tourette syndrome; anxiety disorder; mood disorder; autism spectrum disorder; bipolar disorder; conduct disorder; oppositional defiant disorder; obsessive compulsive disorder; post-traumatic stress disorder; schizophrenia; substance use disorder; suicidality
RecommendationsCoaching or support; FASD-specific (education or intervention); counselling (support group, individual therapy or couples/family); respite or daycare; substance use treatment; sexual health education; anger management; spousal abuse intervention; mental health support; basic needs (income support, food bank, safety precautions); guardianship, power of attorney, personal directive or other substitute decision making; child protection; legal services (legal aid, services for civil or family court issues); allied health services (speech and language pathologist, occupational therapy, behaviour therapy); medication/psychopharmacology or medical referral; accommodations/adaptation in environment, expectations, supports or routine; anticipatory guidance/prevention; reassessment
Difficulties in daily livingSchool problems (requiring teacher assistants, expulsion/suspension); employment problems; problems with living independently; housing problems (requiring assisted or sheltered housing); legal problems (victimisation, offending, custody/family court issues, incarceration)
  • FASD, fetal alcohol spectrum disorder; PAE, prenatal alcohol exposure; SFF, sentinel facial features.