Response rates
| Round | Participation | Median, min, max |
| 1 | Patients invited and completed (n=20) | 59%, 11%, 95% |
| Professionals invited and completed (n=20) | 52%, 19%, 93% | |
| Ratio of professionals to patients (n=62) | 2.7, 4.1, 0.4, 23 | |
| 2 | Patients invited and completed (n=44) | 84%, 32%, 100% |
| Professionals invited and completed (n=46) | 85%, 43%, 100% | |
| 3 | Patients invited and completed (n=20) | 91%, 50%, 100% |
| Professionals invited and completed (n=24) | 91%, 78%, 100% |
*In round two and / or round three some studies described non-responders to a previous round being invited into the round (this could be both patient and professional previous responders or just one type of previous responder). These studies were excluded from analysis of round two and / or round three response rate data for the relevant category of respondent. Round one participation rates were available for studies where the denominator was known (ie, the number of people invited).