Table 1

Descriptive statistics by trialists’ current practice (involving PPP in numerical aspects of trials or not/not sure) and in total

Trialists who involve PPP in numerical aspects (n=116)Trialists who do not involve PPP in numerical aspects or do not know (n=71)Total
Age (years)
 18–241 (0.9)1 (1.4)2 (1.1)
 25–3432 (27.6)30 (42.3)62 (33.2)
 35–4438 (32.8)12 (16.9)50 (26.7)
 45–5425 (21.6)16 (22.5)41 (21.9)
 55–6414 (12.1)8 (11.3)22 (11.8)
 65+5 (4.3)2 (2.8)7 (3.7)
 Rather not say1 (0.9)2 (2.8)3 (1.6)
Gender
 Female80 (69.0)50 (70.4)130 (69.5)
 Male33 (28.4)17 (23.9)50 (26.7)
 Other2 (2.8)2 (1.1)
 Prefer not to say3 (2.6)2 (2.8)5 (2.7)
Work location
 England9 (7.8)8 (11.3)17 (9.1)
 North East England4 (3.4)3 (4.2)7 (3.7)
 North West England7 (6.0)7 (9.9)14 (7.5)
 Yorkshire and the Humber8 (6.9)5 (7.0)13 (7.0)
 West Midlands10 (8.6)2 (2.8)12 (6.4)
 East Midlands3 (2.6)4 (5.6)7 (3.7)
 South West England9 (7.8)2 (2.8)11 (5.9)
 South East England13 (11.2)6 (8.5)19 (10.2)
 London19 (16.4)14 (19.7)33 (17.6)
 East England3 (2.6)1 (1.4)4 (2.1)
 Northern Ireland3 (2.6)3 (4.2)6 (3.2)
 Scotland18 (15.5)12 (16.9)30 (16.0)
 Wales10 (8.6)4 (5.6)14 (7.5)
Which aspects of the trial process are you directly involved in?
 Trial design51 (44.0)37 (52.1)88 (47.1)
 Undertaking the trial48 (41.4)37 (52.1)85 (45.5)
 Dissemination55 (47.4)34 (47.9)89 (47.6)
 Analysis36 (31.0)23 (32.4)59 (31.6)
 Overseeing committee1 (0.9)4 (5.6)5 (2.7)
 All stages56 (48.3)19 (26.8)75 (40.1)
Main role in trial
 Trial manager81 (69.8)44 (62.0)125 (66.8)
 Chief investigator2 (1.7)1 (1.4)3 (1.6)
 Statistician16 (13.8)13 (18.3)29 (15.5)
 Health economist2 (1.7)1 (1.4)3 (1.6)
 Qualitative researcher6 (5.2)2 (2.8)8 (4.3)
 Patient partner4 (3.4)4 (5.6)8 (4.3)
 Coinvestigator9 (7.8)7 (9.9)16 (8.6)
 Researcher6 (5.2)1 (1.4)7 (3.7)
 Systematic reviewer1 (1.4)1 (0.5)
 PPI lead1 (0.9)2 (2.8)3 (1.6)
 Not reported1 (0.9)1 (0.5)
How long have you been working in trials?
 Less than 5 years28 (24.1)29 (40.8)57 (30.5)
 Between 5 and 10 years44 (37.9)17 (23.9)61 (32.6)
 More than 10 years44 (37.9)25 (35.2)69 (36.9)
When do you involve PPP in numerical aspects of trials?
 Never2 (1.7)2 (1.1)
 Rarely10 (8.6)10 (5.3)
 Regularly72 (62.1)72 (38.5)
 Every day32 (27.6)32 (17.1)
What stage of a trial do you involve PPP in the numerical aspects?
 Trial design86 (74.1)86 (46.0)
 Undertaking the trial58 (50.0)58 (31.0)
 Dissemination84 (72.4)84 (44.9)
 Undertaking the trial58 (50.0)58 (31.0)
 Overseeing committee8 (6.9)8 (4.3)
 No information available2 (0.9)4 (1.6)
  • Values are n (%).

  • PPI, patient and public involvement; PPP, patient and public partner.