| Stakeholders (phases 1 and 2 interviews). n=40 |
Work for the specialist palliative care service or a care home (with or without registered nursing) in one of the six cases; or are a resident in one of the care homes; or are a relative of a care home resident in one of the six cases; or work in acute care impacted by hospitalised care home residents Willing to provide informed consent Have capacity to provide their own consent to participate Not engaged in any current safeguarding investigations.
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| Care homes (adopting Needs Rounds as their new standard of care). n=28–36 |
Located near to the specialist palliative care team Provide care to residents who have high clinical nursing/medical needs Willing to sign a memorandum of understanding with the research team, outlining resident demographics and health service use data, facilitate access to staff for interviews, and engagement in Needs Rounds A range of sizes (focusing primarily on larger care homes, following CQC data indicating lower quality in larger facilities),46 sole traders and large corporate provider, and with a range of funding models (NHS/social care and self-funded residents).
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Residents (discussed at Needs Rounds in phase 2)
Estimate of n=1500 |
Resident in a collaborating care home in one of the six case study locations An anticipated life-expectancy of less than 6 months At risk of dying without appropriate planning in place Experiencing inadequately managed bio-psychosocial symptoms Not engaged in any current safeguarding investigations Able to provide their own informed consent
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| Relatives (completing outcome measures in phase 2) n=300 |
The relative of a resident who was discussed in Needs Rounds Able to provide their own informed consent.
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| PPI evaluation n=15 |
Coinvestigator or a member of one of the case study sites Able to provide their own informed consent
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