Table 1

Participant characteristics of those completing T1 survey and those completing all three survey timepoints

T1 (n=569)T1, T2 and T3 (n=377)
PLWD (n=61)Current carers (n=219)Former carers (n=66)Older adults (n=223)PLWD (n=37)Current carers (n=149)Former carers (n=39)Older adults (n=152)
N (%)
Gender
 Female27 (44.3)168 (77.1)55 (83.3)137 (61.7)14 (37.8)118 (79.7)32 (82.1)90 (59.2)
 Male34 (55.7)50 (22.9)11 (16.7)85 (38.3)23 (62.2)30 (20.3)7 (17.9)62 (40.8)
Ethnicity
 White58 (96.7)211 (96.3)65 (98.5)216 (98.2)35 (94.6)143 (96.0)38 (97.4)148 (98.7)
 Other2 (3.4)8 (3.7)1 (1.5)4 (1.9)2 (5.4)6 (4.0)1 (2.6)2 (1.3)
Living situation
 Alone13 (21.3)33 (15.1)17 (26.2)79 (35.6)8 (21.6)18 (12.2)11 (28.9)59 (39.1)
 With someone48 (78.7)185 (84.9)48 (73.8)143 (64.4)29 (78.4)130 (87.8)27 (71.1)92 (60.9)
Index of Multiple Deprivation Quintile
 112 (23.1)54 (32.1)10 (19.2)61 (33.5)5 (16.1)35 (31.0)6 (19.4)39 (31.7)
 216 (30.8)50 (29.8)20 (38.5)44 (24.2)11 (35.5)34 (30.1)11 (35.5)29 (23.6)
 310 (19.2)32 (19.0)14 (26.9)37 (20.3)6 (19.4)20 (17.7)9 (29.0)26 (21.1)
 410 (19.2)14 (8.3)5 (9.6)26 (14.3)5 (16.1)11 (9.7)4 (12.9)18 (14.6)
 54 (7.7)18 (10.7)3 (5.8)14 (7.7)4 (12.9)13 (11.5)1 (3.2)11 (8.9)
Type of dementia
 Alzheimer’s20 (32.8)100 (46.5)6 (23.1)14 (37.8)75 (50.7)2 (20.0)
 Mixed13 (21.3)49 (22.8)7 (26.9)6 (16.2)34 (23.0)4 (40.0)
 Vascular11 (18.0)27 (12.6)4 (15.4)8 (21.6)18 (12.2)3 (30.0)
 Other17 (27.9)39 (18.1)9 (34.5)9 (24.3)21 (14.1)1 (10.0)
Mean (SD), (range)
 Age70 (±10),
(45–88)
61 (±13),
(23–89)
64 (±14),
(22–95)
72 (±6),
(65–90)
72 (±10),
(50–88)
62 (±13),
(23–89)
65 (±13),
(22–95)
73 (±6),
(65–90)
 Years of education15 (±4),
(4–25)
16 (±4),
(6–28)
17 (±4),
(10–29)
17 (±4),
(7–25)
13 (±4),
(4–20)
16 (±4),
(6–28)
16 (±4),
(10–29)
16 (±4),
(7–24)
  • Five hundred and sixty-nine participants completed the survey at T1, with duplicates and missing cases removed. Three hundred and seventy-seven participants had completed all three survey timepoints, with duplicates and missing cases removed.

  • PLWD, People living with dementia.