Table 1

Summary of study population

FamilyParticipants and identifierChild’s age at recruitmentType of conditionMale or femaleGP practice areaPalliative care service involvedTotal number of interviewsInterview details
1Child (C001)5CancerMUrbanNo41: mother
Mother (M001)2: mother and child individual interviews
Father (F001)3: family group
2Child (C002)17CongenitalFInner cityYes33× family group interviews all including child
Mother (M002)
Brother (B002)
3Mother (M003)8CongenitalFInner cityYes31: mother
Father (F003)2: both parents
3: mother
4Father (F004)8CongenitalFInner cityYes11: father
5Child (C005)6CongenitalMUrbanNo33× family group interviews all including child
Mother (M005)
6Mother (M006)18CongenitalMInner cityNo33× interviews with mother
7Child (C007)7CancerMUrbanNo51: family group
Mother (M007)2: parents and child individually
Father (F007)3: mother and child individually
8Child (C008)5CongenitalMInner cityNo41: family group
Mother (M008)2: mother and child individual interviews
Brother (B008)3: family group
9Child (C009)11CancerFInner cityNo33× family group interviews all including child
Mother (M009)
Father (F009)
10Mother (M010)5CongenitalMUrbanYes11: mother (child present but too unwell to contribute)
11Child (C011)17CongenitalFUrbanNo41: family group
Mother (M011)2: family group
Stepfather (F011)3: family and child individual interviews
12Child (C012)14CancerMUrbanNo11: family group
Mother (M012)
13Child (C013)14CancerMUrbanYes31: mother
Mother (M013)2: mother and child interviews
14Child (C014)10CongenitalMRuralYes33× family group interviews (including child)
Mother (M014)
  • GP, general practitioner.