Patients | Professionals | ||
Treatment burden | Understanding CKD, its treatment and consequences | Given inadequate information to manage condition | Health literacy issues, language barriers |
Information gathering | Perceived lack of benefit in medications | ||
Conflicting advice | Conflicting advice | ||
Anxiety/uncertainty about future | Anxiety/uncertainty about future | ||
Multimorbidity and polypharmacy adding complexity | Multimorbidity and polypharmacy adding complexity | ||
Adhering to treatments and management | |||
Appointments | Making note/keeping track of multiple appointments | Making note/keeping track of multiple appointments | |
Travel to appointments/no local care | Travel to appointments/no local care | ||
Parking | Parking | ||
Long waiting times | Long waiting times | ||
Wasted time and effort | Wasted time and effort | ||
Medication | Lack of choice/lack of medication review | ||
Remembering names of or distinguishing medications | Remembering names of or distinguishing medications | ||
Practical difficulties with handling medication | Practical difficulties with taking medication | ||
Keeping up with changing medication | |||
Challenges filling prescriptions | |||
Multimorbidity and polypharmacy adding complexity | |||
Lifestyle changes | Changing diets | ||
Bladder issues | |||
Interacting with others | Difficulty obtaining GP appointments | Difficulty obtaining GP appointments | |
Short appointment lengths | |||
Unexpected changes to healthcare (eg, being taken off dialysis list) | |||
Lack of interpersonal continuity of care | Lack of interpersonal continuity of care | ||
Communication barriers with health professionals | Communication barriers with health professionals | ||
Lack of communication and coordination between primary and secondary care | |||
Lack of communication and coordination between specialists | Lack of communication and coordination between specialists | ||
Lack of standardised procedures (eg, different blood forms) |
*Differences in perspectives highlighted in bold.
CKD, chronic kidney disease; GP, general practitioner.