Table 2

Stage 1 carer participants

Bereaved carers (N=14)Current carers (N=19)
Relationship to patient
 Spouse/partner1317
 Daughter/son11
 Other01
Age range, years
 <=4502
 46–5522
 56–6516
 66–7586
 >7532
 Missing01
Carer description of type of MND
 ALS58
 MND only61
 Bulbar33
 Primary lateral sclerosis02
 Progressive muscular atrophy01
 Not known04
Duration of caring
 Less than 1 year31
 1–2 years89
 3–4 years26
 5–10 years11
 More than 10 years02
  • ALS, amyotrophic lateral sclerosis; MND, motor neurone disease.