Stage 1 carer participants
Bereaved carers (N=14) | Current carers (N=19) | |
Relationship to patient | ||
Spouse/partner | 13 | 17 |
Daughter/son | 1 | 1 |
Other | 0 | 1 |
Age range, years | ||
<=45 | 0 | 2 |
46–55 | 2 | 2 |
56–65 | 1 | 6 |
66–75 | 8 | 6 |
>75 | 3 | 2 |
Missing | 0 | 1 |
Carer description of type of MND | ||
ALS | 5 | 8 |
MND only | 6 | 1 |
Bulbar | 3 | 3 |
Primary lateral sclerosis | 0 | 2 |
Progressive muscular atrophy | 0 | 1 |
Not known | 0 | 4 |
Duration of caring | ||
Less than 1 year | 3 | 1 |
1–2 years | 8 | 9 |
3–4 years | 2 | 6 |
5–10 years | 1 | 1 |
More than 10 years | 0 | 2 |
ALS, amyotrophic lateral sclerosis; MND, motor neurone disease.