Stage 2 carer advisors
| Bereaved carers (N=10) | Current carers (N=9) | |
| Relationship to patient | ||
| Spouse/partner | 9 | 8 |
| Daughter/son | 1 | 0 |
| Other | 0 | 1 |
| Age range, years | ||
| <=45 | 0 | 2 |
| 46–55 | 2 | 1 |
| 56–65 | 1 | 3 |
| 66–75 | 5 | 2 |
| >75 | 2 | 0 |
| Missing | 0 | 1 |
| Carer description of type of MND | ||
| ALS | 5 | 5 |
| MND only | 3 | 1 |
| Bulbar | 1 | 1 |
| Primary lateral sclerosis | 0 | 1 |
| Progressive muscular atrophy | 0 | 0 |
| Not known | 1 | 1 |
| Duration of caring | ||
| Less than 1 year | 3 | 1 |
| 1–2 years | 5 | 4 |
| 3–4 years | 2 | 3 |
| 5–10 years | 0 | 1 |
| More than 10 years | 0 | 0 |
ALS, amyotrophic lateral sclerosis; MND, motor neurone disease.