Inclusion/exclusion criteria for Stages 1 and 2 recruitment
| Current carers | Bereaved carers | |
| Inclusion | Patient at least 3 months postdiagnosis | 6–12 months postbereavement |
| Exclusion | Younger than 18 years | Younger than 18 years |
| Clinician concerns about psychological/physical ability to cope with study participation | Clinician concerns about psychological/physical ability to cope with study participation | |
| Unable to give informed consent | Unable to give informed consent |