Participant characteristics
| Characteristics | N (%) |
| Sex | |
| Men | 10 (33) |
| Women | 20 (67) |
| Age group (years) | |
| 18 to 21 | 12 (40) |
| 22 to 25 | 9 (30) |
| 26 to 30 | 7 (23) |
| 31 to 35 | 2 (7) |
| Country | |
| Australia | 16 (55) |
| Canada | 5 (17) |
| India | 4 (13) |
| UK | 3 (10) |
| USA | 1 (3) |
| New Zealand | 1 (3) |
| Highest level of education | |
| Primary school | 1 (3) |
| Secondary school, grade 10 | 4 (13) |
| Secondary school, grade 12 | 6 (20) |
| Tertiary, certificate/diploma | 4 (13) |
| Tertiary, undergraduate/bachelor | 13 (43) |
| Tertiary, postgraduate/masters/PhD | 2 (7) |
| Employment status | |
| Full-time | 6 (20) |
| Part-time or casual | 7 (23) |
| Student | 13 (43) |
| Voluntary work | 1 (3) |
| Not employed | 4 (13) |
| Marital status | |
| Married | 4 (13) |
| Partner (living together) | 4 (13) |
| Partner (not living) | 4 (13) |
| Divorced/separated | 0 (0) |
| Single | 18 (60) |
| Living with | |
| Parents/family | 19 (63) |
| Housemates | 2 (7) |
| Partner | 7 (23) |
| By themselves | 2 (7) |
| No. of children | |
| 0 | 28 (93) |
| 1 | 2 (7) |
| Age at CKD diagnoses (years) | |
| Prenatal or at birth | 2 (7) |
| 0 to 5 | 7 (23) |
| 6 to 10 | 9 (30) |
| 11 to 15 | 8 (27) |
| 16+ | 4 (13) |
| CKD diagnosis or cause | |
| Congenital abnormalities of kidney/urinary tract | 7 (23) |
| Focal segmental glomerulosclerosis | 4 (13) |
| Nephrotic syndrome (cause not specified) | 3 (10) |
| Polycystic kidney disease | 3 (10) |
| Haemolytic uraemic syndrome | 2 (7) |
| Lupus nephritis | 2 (7) |
| Reflux nephropathy | 2 (7) |
| Granulomatosis with polyangiitis | 1 (3) |
| Henoch-Schönlein purpura | 1 (3) |
| Diabetic | 1 (3) |
| Unknown | 1 (3) |
| Other | 3 (10) |
| Current CKD treatment stage | |
| Not on kidney replacement therapy | 7 (23) |
| 5D, haemodialysis | 2 (7) |
| 5D, peritoneal dialysis | 0 (0) |
| 5T, deceased donor kidney transplant | 13 (43) |
| 5T, living donor kidney transplant | 8 (27) |
| Treatment during childhood* | |
| No kidney replacement therapy | 15 |
| Haemodialysis | 8 |
| Peritoneal dialysis | 8 |
| Transplant | 13 |
N=30. Percentage may not total 100 due to rounding.
*May not add up, because of possible multiple answers per person.
CKD, chronic kidney disease.