Overview of the record types available from the PPRN
| Record type | Description | Data availability |
| Pregnancy/neonatal | Maternal and neonatal characteristics and perinatal care from pregnancies with a gestational age of at least 16 weeks captured by midwife practices, gynaecologists, paediatricians and neonatologists (maintained by Perined). | From 1999 onwards (full coverage for PPRN cohorts). |
| Medication | General practitioner or specialist prescribed healthcare products including information on type of product, date, strength, dosage regimen, route of administration, prescriber specialty and costs dispensed by outpatient pharmacy. Inpatient medication available for a subcohort. | From 1998 onwards (full coverage for PPRN cohorts for outpatient medication; inpatient medication only for a subcohort). |
| General practitioner | Patient records registered by general practitioners (gatekeeper of the Dutch healthcare system) including information on diagnoses and symptoms, laboratory test results, general practitioner visits and referrals to specialists. | From 2003 onwards (partial coverage for PPRN cohorts). |
| Laboratory tests | Results of laboratory tests performed on clinical specimens, requested by general practitioners or medical specialists including information on date and time of testing, test result, unit of measurement and type of clinical specimen. | From 1998 onwards (partial coverage for PPRN cohorts). |
| Hospital admissions | Hospital admissions (ie, inpatient hospital records) for more than 24 hours and admissions for less than 24 hours for which a bed is required including information on hospital admission and discharge dates, discharge diagnoses and procedures (maintained by the Dutch Hospital Data Foundation).12 | From 1998 onwards (full coverage for PPRN cohorts up to 2015; partial coverage for PPRN cohorts from 2016 onwards) after permission is granted by the Dutch Hospital Data Foundation. |
| Ambulatory care | Ambulatory care (ie, outpatient hospital records; eg, by paediatrician), including diagnosis, number of visits, involved specialist (maintained by the Dutch Hospital Data Foundation).12 | From 2016 onwards (partial coverage for PPRN cohorts) after permission is granted by the Dutch Hospital Data Foundation. |
| Pathology reports | Data on excerpts of histological, cytological and autopsy examinations, obtained through linkage with the national Pathology Registry13 (maintained by the PALGA Foundation). | From 1998 onwards (full coverage for PPRN cohorts) after permission is granted by the PALGA Foundation. |
| Malignancies | Data on all newly diagnosed cancer cases including information on cancer diagnosis, tumour staging, tumour site, morphology and initial treatment, obtained through linkage with the national Netherlands Cancer Registry14 (maintained by the Netherlands Comprehensive Cancer Organisation). | From 1998 onwards (full coverage for PPRN cohorts) after permission is granted by the Netherlands Comprehensive Cancer Organisation. |
PPRN, PHARMO Perinatal Research Network.