Types of initiatives involving bereaved resource parents
| Types of initiatives | Total number of activities | Number of BRPs involved |
| Research | ||
| Presentation at conferences, panels (testimonial, workshops, study results) | 24 | 3 |
| Co-redaction, co-author, sole author of articles or abstracts | 52 | 4 |
| Co-creation, review, editing research protocols, production of research tools, reviewing and co-creating consent forms | 46 | 4 |
| Data analysis, coding, interpretation of results | 22 | 4 |
| Member of Parent Advisory Board, member of Data Safety and Monitoring Committee | 8 | 1 |
| Collaboration in the recruitment of families, data acquisition | 6 | 4 |
| Education | ||
| Testimonials and narratives integrated in courses | 18 | 1 |
| Co-teaching with providers and educators, co-evaluation of trainees during simulations, parental presence/feedback during simulations (workshops, case-based learning) | 8 | 3 |
| Clinical care/administration | ||
| Interventions in the media and social media management | 53 | 1 |
| Staff/interdisciplinary meetings and presence at clinical care committees | 51 | 2 |
| Welcome visit for new parents | 37 | 2 |
| Creation, evaluation and dissemination of information resources for new parents (and bereaved parents) | 7 | 5 |
| Involvement in the coordination of resource-parent programme: matching provider’s projects with selected parents, recruitment, training and support of new resource parents | 42 | 3 |
| Hospital design/redesign, development of clinical care protocols, quality control projects, evaluation of clinical care | 32 | 4 |
| ‘Matched buddies’ for new bereaved parents (including contacts via internet or phone) | 28 | 3 |
| Fund raising (clinical care, resource parent initiatives, hospital foundation) | 21 | 2 |
| Structured meetings with NICU-parents: information sessions (filling forms, discharge planning, and so on) | 10 | 2 |
BRPs, bereaved resource parents; NICU, Neonatal Intensive Care Unit.