Table 2

Included articles and annual registry reports with extracted data

IDLead author (year)FormatNo of remindersRR (%) at follow-up pointsTotal follow-up time (years)Change in RR (%/year)*
#0#1#2#3#4
Database searches—prospective cohort studies
1Ahmed†27Paper19085822−4.0
2Ashley‡28Mix>18570661.25−25.3
3Blanchard29NDND99858281504−11.0
499705744454−13.5
5Gjeilo30Paper11008989825−3.6
6Pieterse†31Paper>186812−5.0
Database searches—registry-based studies
7Helsten§,‡32Mix>1627119.1
8Imam‡16Paper>199918983792−10.1
9Olsson33Paper188828−0.7
10Porchet†34Paper>187989114.0
11Simony35Paper1100841−15.8
Registry articles
12Bengtsson36Paper193875−1.2
13Elkan¶,‡24Paper17873622−8.0
141009899−0.6
15Gjertsen37Paper054491−7.5
16Kvist38Mix>1665048485−3.6
1761494746−3.0
1872404738−6.8
1968384638−6.0
2061454542−3.8
2158434442−3.2
22Lind†39Web046311−15.0
23Rahr-Wagner†40Web033271−6.5
Registry reports
24SweSpine†,§41MixND7157445−6.7
25Danish†42Web037311−5.4
26Danish Hip Arthroscopy Reg42Web>1525648343−6.0
27DaneSpine†,**43Paper18373595−5.9
28483724−6.0
29Swedish Fracture Reg †,§42Paper155411−13.7
30Swedish Hip Arthroplasty Reg†,¶42Mix1838814.4
31Swedish Knee Ligament Reg†25Mix1675047453910−2.7
326248474438−2.3
33Norwegian Hip Fracture Reg†44Paper05757553−0.6
34UK National Ligament Reg45MixND5835302−14.0
35UK National Joint Registry†,¶,§46Paper>142440.54.3
361007561843−5.1
37100760.5−48.2
38New Zealand ACL-Reg†,**23Mix>11008680862−7.0
391008577832−8.5
40Norwegian Knee Ligament Reg†,**Paper162585910−0.4
  • Follow-up point #0 is the reported baseline time point or time of intervention as specified in the article or report. The subsequent time point intervals (#2, #3…) vary for each article or report and is not the follow-up year. Articles or reports with multiple rows represent separate subgroups with individual RRs reported within the article.

  • *This is calculated by taking the difference between the last and first RRs and dividing it by the number of follow-up years between the last and first reported RR to show the average change in RR per year.

  • †Author/registry emailed for reminders and/or format information.ID 1, Rens Kempeneers, Feb 2019 (personal communication); ID 6, Moniek ter Kuile, Feb 2019 (personal communication); ID 10, Anne Mannion, Feb 2019 (personal communication); ID 22, 23, 25, Martin Lind, Feb 2019 (personal communication); ID 27, 28, Karen H. Hansen, Feb 2019 (personal communication); ID 29, Karin Pettersson, Feb 2019 (personal communication); ID 30, Sandra Olausson, Feb 2019 (personal communication); ID 31, 32, Anna Pappas, Feb 2019 (personal communication); ID 33, Kari A. Vågstøl, Feb 2019 (personal communication); ID 35, 36, 37, Beth at NJR Helpdesk, Feb 2019 (personal communication); ID 38, 39, Charlotte Smith, Feb 2019 (personal communication); ID 40, Anne M. Fenstad, Feb 2019 (personal communication).

  • ‡Registry emailed about RRs. ID 27, 28, Karen H. Hansen, Feb 2019 (personal communication); ID 38, 39, Charlotte Smith, Feb 2019 (personal communication); ID 40, Anne M. Fenstad, Feb 2019 (personal communication).

  • §Some or all RRs calculated by author using numbers available in article or report.

  • ¶Follow-up questionnaires only sent to previous responders.

  • **Change in number of PROMs or questions sent at subsequent follow-ups.

  • ND, not determined; PROMs, patient-reported outcome measures; RR, response rate.