Included articles and annual registry reports with extracted data
ID | Lead author (year) | Format | No of reminders | RR (%) at follow-up points | Total follow-up time (years) | Change in RR (%/year)* | ||||
#0 | #1 | #2 | #3 | #4 | ||||||
Database searches—prospective cohort studies | ||||||||||
1 | Ahmed†27 | Paper | 1 | 90 | 85 | 82 | 2 | −4.0 | ||
2 | Ashley‡28 | Mix | >1 | 85 | 70 | 66 | 1.25 | −25.3 | ||
3 | Blanchard29 | ND | ND | 99 | 85 | 82 | 81 | 50 | 4 | −11.0 |
4 | 99 | 70 | 57 | 44 | 45 | 4 | −13.5 | |||
5 | Gjeilo30 | Paper | 1 | 100 | 89 | 89 | 82 | 5 | −3.6 | |
6 | Pieterse†31 | Paper | >1 | 86 | 81 | 2 | −5.0 | |||
Database searches—registry-based studies | ||||||||||
7 | Helsten§,‡32 | Mix | >1 | 62 | 71 | 1 | 9.1 | |||
8 | Imam‡16 | Paper | >1 | 99 | 91 | 89 | 83 | 79 | 2 | −10.1 |
9 | Olsson33 | Paper | 1 | 88 | 82 | 8 | −0.7 | |||
10 | Porchet†34 | Paper | >1 | 87 | 98 | 91 | 1 | 4.0 | ||
11 | Simony35 | Paper | 1 | 100 | 84 | 1 | −15.8 | |||
Registry articles | ||||||||||
12 | Bengtsson36 | Paper | 1 | 93 | 87 | 5 | −1.2 | |||
13 | Elkan¶,‡24 | Paper | 1 | 78 | 73 | 62 | 2 | −8.0 | ||
14 | 100 | 98 | 99 | −0.6 | ||||||
15 | Gjertsen37 | Paper | 0 | 54 | 49 | 1 | −7.5 | |||
16 | Kvist38 | Mix | >1 | 66 | 50 | 48 | 48 | 5 | −3.6 | |
17 | 61 | 49 | 47 | 46 | −3.0 | |||||
18 | 72 | 40 | 47 | 38 | −6.8 | |||||
19 | 68 | 38 | 46 | 38 | −6.0 | |||||
20 | 61 | 45 | 45 | 42 | −3.8 | |||||
21 | 58 | 43 | 44 | 42 | −3.2 | |||||
22 | Lind†39 | Web | 0 | 46 | 31 | 1 | −15.0 | |||
23 | Rahr-Wagner†40 | Web | 0 | 33 | 27 | 1 | −6.5 | |||
Registry reports | ||||||||||
24 | SweSpine†,§41 | Mix | ND | 71 | 57 | 44 | 5 | −6.7 | ||
25 | Danish†42 | Web | 0 | 37 | 31 | 1 | −5.4 | |||
26 | Danish Hip Arthroscopy Reg42 | Web | >1 | 52 | 56 | 48 | 34 | 3 | −6.0 | |
27 | DaneSpine†,**43 | Paper | 1 | 83 | 73 | 59 | 5 | −5.9 | ||
28 | 48 | 37 | 24 | −6.0 | ||||||
29 | Swedish Fracture Reg †,§42 | Paper | 1 | 55 | 41 | 1 | −13.7 | |||
30 | Swedish Hip Arthroplasty Reg†,¶42 | Mix | 1 | 83 | 88 | 1 | 4.4 | |||
31 | Swedish Knee Ligament Reg†25 | Mix | 1 | 67 | 50 | 47 | 45 | 39 | 10 | −2.7 |
32 | 62 | 48 | 47 | 44 | 38 | −2.3 | ||||
33 | Norwegian Hip Fracture Reg†44 | Paper | 0 | 57 | 57 | 55 | 3 | −0.6 | ||
34 | UK National Ligament Reg45 | Mix | ND | 58 | 35 | 30 | 2 | −14.0 | ||
35 | UK National Joint Registry†,¶,§46 | Paper | >1 | 42 | 44 | 0.5 | 4.3 | |||
36 | 100 | 75 | 61 | 84 | 3 | −5.1 | ||||
37 | 100 | 76 | 0.5 | −48.2 | ||||||
38 | New Zealand ACL-Reg†,**23 | Mix | >1 | 100 | 86 | 80 | 86 | 2 | −7.0 | |
39 | 100 | 85 | 77 | 83 | 2 | −8.5 | ||||
40 | Norwegian Knee Ligament Reg†,** | Paper | 1 | 62 | 58 | 59 | 10 | −0.4 |
Follow-up point #0 is the reported baseline time point or time of intervention as specified in the article or report. The subsequent time point intervals (#2, #3…) vary for each article or report and is not the follow-up year. Articles or reports with multiple rows represent separate subgroups with individual RRs reported within the article.
*This is calculated by taking the difference between the last and first RRs and dividing it by the number of follow-up years between the last and first reported RR to show the average change in RR per year.
†Author/registry emailed for reminders and/or format information.ID 1, Rens Kempeneers, Feb 2019 (personal communication); ID 6, Moniek ter Kuile, Feb 2019 (personal communication); ID 10, Anne Mannion, Feb 2019 (personal communication); ID 22, 23, 25, Martin Lind, Feb 2019 (personal communication); ID 27, 28, Karen H. Hansen, Feb 2019 (personal communication); ID 29, Karin Pettersson, Feb 2019 (personal communication); ID 30, Sandra Olausson, Feb 2019 (personal communication); ID 31, 32, Anna Pappas, Feb 2019 (personal communication); ID 33, Kari A. Vågstøl, Feb 2019 (personal communication); ID 35, 36, 37, Beth at NJR Helpdesk, Feb 2019 (personal communication); ID 38, 39, Charlotte Smith, Feb 2019 (personal communication); ID 40, Anne M. Fenstad, Feb 2019 (personal communication).
‡Registry emailed about RRs. ID 27, 28, Karen H. Hansen, Feb 2019 (personal communication); ID 38, 39, Charlotte Smith, Feb 2019 (personal communication); ID 40, Anne M. Fenstad, Feb 2019 (personal communication).
§Some or all RRs calculated by author using numbers available in article or report.
¶Follow-up questionnaires only sent to previous responders.
**Change in number of PROMs or questions sent at subsequent follow-ups.
ND, not determined; PROMs, patient-reported outcome measures; RR, response rate.