Table 1

Terms used in the systematic searches

Search 1 in PubMedSearch 2 in EMBASE and Ovid MEDLINE
  1. (“register” OR “registry” OR “prospective cohort” OR

    “prospective cohort study”)

  2. (“PROMs” OR “subjective outcome” OR “patient outcome” OR “clinical symptoms”)

  3. (“compliance” OR “response rate”)

  4. 1 and 2 and 3

  1. exp Registries/or exp Register/

  2. (register* or registr*).tw.

  3. prospective cohort*.tw.

  4. 1 or 2 or 3

  5. exp Patient Reported Outcome Measures/ or exp Patient Outcome Assessment/or exp “Outcome Assessment (Health Care)”/ or exp Patient Reported Outcome/ or exp Outcome Assessment/ or exp “Outcome and Process Assessment (Health Care)”/

  6. patient-reported outcome.tw.

  7. PROM.tw.

  8. exp self report/

  9. self report*.tw.

  10. exp Questionnaires/ or exp Questionnaire/

  11. exp Survey/and Questionnaires/

  12. subjective outcome*.tw.

  13. patient outcome*.tw.

  14. clinical symptom*.tw.

  15. response rate.tw.

  16. compliance.tw.

  17. 15 or 16

  18. randomized controlled stud*.mp.

  19. randomized controlled trial*.mp.

  20. rct.mp

  21. 18 or 19 or 20

  22. (retrospective or qualitative stud*).mp.

  23. 21 or 22

  24. 5 or 6 or 7 or 8 or 9 or 10 or 11 or 12 or 13 or 14

  25. 4 and 17 and 24

  26. 25 not 23