Table 1

Patient data collection schedule

BaselineAt time of consentDuring non-invasive respiratory supportEnd of PICU/HDU stayEnd of hospital stayAt 6 months
In-hospital
 Clinical/baseline data✔     
 Patient/parent details ✔    
 Types of respiratory support received*✔ ✔   
 Patient comfort and sedation use  ✔   
 Parental stress ✔    
 Discharge data   ✔✔ 
 Safety monitoring data  ✔   
At follow-up
 PedsQL     ✔
 CHU-9D     ✔
 Health services/resource use     ✔

  • *Including weaning, switches and escalations from high flow nasal cannula/continuous positive airway pressure.

  • CHU-9D, Child Health Utility-9D; HDU, high-dependency unit; PedsQL, Paediatric Quality of Life Inventory; PICU, paediatric intensive care unit.