LARS is as much a psychological disorder as it is a physical condition | Participants felt underprepared for their new bowel function, which greatly contributed to their anxiety |
Participants felt alone and isolated, as if they were the only patients experiencing these symptoms | |
Participants were never explained that symptoms may improve; most felt extremely hopeless in the first few months postoperatively | |
The booklet was easy to read and follow | Participants found that the booklet was written at an appropriate level for patients |
Participants found the images extremely helpful in understanding how, and why, LARS occurs | |
Participants felt that the booklet was complete, and was a perfect length | |
Information was lacking in certain keys areas | Participants wanted more emphasis to be placed on emotional well-being in the booklet |
Participants wanted more examples of foods that could trigger their LARS, as well as more detail on how to use and find an enema | |
Participants agreed that it is vital to have a dedicated nurse to review the booklet and provide additional support | |
The booklet is an excellent resource that would have made a big difference in their first year | The booklet’s greatest impact is in terms of expectation management and psychological reassurance |
Participants agreed that they would have consulted the booklet frequently in the first year after surgery |
LARS, low anterior resection syndrome.