Characteristics of eligible patients who did and did not agree to participate
| Variable | Agreed to participate | Did not agree to participate | |||
| SAFE+TAU | TAU | Combined | |||
| (n=26) | (n=25) | (n=51) | (n=379)* | ||
| Sex: n (%) | |||||
| Male | 10 (38.5%) | 12 (48.0%) | 22 (43.1%) | 192 (50.7%) | |
| Female | 16 (61.5%) | 13 (52.0%) | 29 (56.9%) | 187 (49.3%) | |
| Age at presentation to ED (years) | |||||
| Mean | 39.2 | 40.7 | 39.9 | 40.6 | |
| SD | 13.96 | 17.52 | 15.66 | 16.83 | |
| Median (min, max) | 37.1 (18.9 to 69.9) | 41.4 (16.5 to 71.3) | 38.8 (16.4 to 71.3) | 37.5 (16.2 to 84.4) | |
| IMD† | |||||
| IMD decile: 1 | n (%) | 11 (42.3%) | 14 (56.0%) | 25 (49.0%) | 188 (49.6%) |
| IMD rank | Median (min, max) | 574.0 (44 to 3202) | 1231.5 (48 to 2166) | 673.0 (44 to 3202) | 924.5 (28 to 3107) |
| IMD decile: 2–3 | n (%) | 7 (26.9%) | 6 (24.0) | 13 (25.4%) | 82 (21.6%) |
| IMD rank | Median (min, max) | 6785 (4649 to 8281) | 6665 (3989 to 7816) | 6785 (3989 to 8281) | 5309 (3291 to 9835) |
| IMD decile: 4–6 | n (%) | 2 (7.7%) | 4 (16.0%) | 6 (11.8%) | 59 (15.6%) |
| IMD rank | Median (min, max) | 128 366 (9881 to 15791) | 119 244 (11 480 to 16004) | 119 244 (9881 to 16004) | 144 599 (10 277 to 19 659) |
| IMD decile: 7–10 | n (%) | 5 (19.2%) | 1 (4.0%) | 6 (11.8%) | 50 (13.2%) |
| IMD rank | Median (min, max) | 276 422 (24 971 to 31 002) | 327 244 (32 724 to 32 724) | 288 766 (24 971 to 32 724) | 226 733 (19 826 to 32 396) |
| Missing | 1 (3.8%) | 0 (0.0%) | 1 (2.0%) | 0 (0.0%) | |
| Ethnicity: n (%) | |||||
| White | 25 (96.2%) | 23 (92.0%) | 48 (94.1%) | – | |
| Asian/Asian British | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) | – | |
| Black/African/Caribbean/Black British | 1 (3.8%) | 1 (4.0%) | 2 (3.9%) | – | |
| Mixed/multiple ethnic groups | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) | – | |
| Other ethnic group | 0 (0.0%) | 1 (4.0%) | 1 (2.0%) | – | |
| Other significant medical history: n (%) | |||||
| No, none | 13 (50.0%) | 10 (40.0%) | 23 (45.1%) | – | |
| Yes, another medical condition/s | 10 (38.5%) | 13 (52.0%) | 23 (45.1%) | – | |
| Yes, a psychiatric condition | 1 (3.8%) | 0 (0.0%) | 1 (2.0%) | – | |
| Yes, both medical and psychiatric conditions | 2 (7.7%) | 2 (8.0%) | 4 (7.8%) | – | |
| Education: n (%) | |||||
| O' levels/GCSEs/level 1 or 2 NVQ | 13 (50.0%) | 14 (56.0%) | 27 (53.0%) | – | |
| A' levels/level 3 NVQ | 5 (19.2%) | 3 (12.0%) | 8 (15.7%) | – | |
| University degree/graduate certificate or diploma | 5 (19.2%) | 5 (20.0%) | 10 (19.6%) | – | |
| Postgraduate university degree (eg, PGCE, MSc, MA, PhD) | 2 (7.7%) | 0 (0.0%) | 2 (3.9%) | – | |
| Missing | 1 (3.9%) | 3 (12.0%) | 4 (7.8%) | – | |
| Time since epilepsy diagnosis (years) | |||||
| Mean | 19.9 | 22.6 | 21.2 | – | |
| SD | 14.85 | 18.38 | 16.57 | – | |
| Median (mix, max) | 16.8 (1.8 to 53.9) | 19.3 (1.7 to 64.9) | 17.3 (1.7 to 64.9) | – | |
| Time since last epileptic seizure (days) | |||||
| Mean | 53.6 | 40.1 | 47 | – | |
| SD | 101.1 | 61.21 | 83.34 | – | |
| Median (min, max) | 14.0 (1 to 340) | 10.5 (0 to 235) | 14.0 (0 to 340) | – | |
| Missing | 3 (11.5%) | 3 (12.0%) | 6 (11.8%) | – | |
| Number of epileptic seizures in the last 12 months | |||||
| 0–3 | 4 (15.3%) | 3 (12.0%) | 7 (13.8%) | – | |
| 6-April | 1 (3.8%) | 5 (20.0%) | 6 (11.7%) | – | |
| 9-July | 3 (11.5%) | 3 (12.0%) | 6 (11.7%) | – | |
| 10 or more | 18 (69.2%) | 14 (56.0%) | 32 (62.8%) | – | |
*Includes seven patients who could not be contacted due to an incorrect postal address and two patients who were not sent an invite letter in error. min=minimum, max=maximum.
†The IMD ranks every small area in England from 1 (most deprived area) to 32 844 (least deprived area). IMD rank and decile missing for one recruited participant as they resided in Wales.
GCSE, General Certificate of Secondary Education; IMD, Index of Multiple Deprivation; NVQ, National Vocational Qualification; SAFE, Seizure First Aid Training For Epilepsy; TAU, treatment-as-usual.