Table 1

Overview of patient characteristics (n=55) and involvement of relatives by diagnostic group (n=28)

DiagnosisPatients (relatives*)Total femalesTotal malesMedian age
years (range)
Duration of intervals (months/range)
Appraisal/help seeking†Diagnostic‡Total§
Non-Hodgkin lymphoma
 Diffuse large B-cell12 (7)5764 (48–81)0.5–131–152–17
 Follicular lymphoma9 (3)4563 (39–84)0.5–121.5–122–15
 Marginal zone6 (1)4262 (57–76)0.5–113–253.5–25.5
 Mantle cell3 (3)2171 (70–75)1–62–102.5–10.5
Hodgkin lymphoma 5 (2)2336 (23–56)0.5–121–123.5–13
Myeloma 20 (12)14668 (43–78)0.5–70.5–172–18
Total 55 (28) 31 24 64 (23– 84) 0.5– 13 0.5– 25 2– 25.5
  • *Spouses, partners, children.

  • †Initial symptom/health change to first help seeking (from information estimated by patients completing the routine self-reported Haematological Malignancy Research Network (HMRN) questionnaire).

  • ‡First help seeking to diagnosis (start point also estimated from the self-reported HMRN questionnaire).

  • §Initial symptom/health change to diagnosis.