Table 1

Barriers and their associated solutions to patient-oriented research (POR) identified by patients and clinician-researchers

Barriers to PORIdentified solutions
Lack of awareness of the existence of PORBuilding networks with patient and family advisors.
Reaching out to communities.
Connecting with healthcare providers.
Using social media (eg, Facebook, Twitter).
Lack of understanding of the role of patients—where do patients fit into health research?Clear expectations and roles.
Including a protocol for conducting POR.
Access/opportunities to participation in POR (distance, time)Accommodating patient partners (ie, using technology such as email, phone, etc. to allow for virtual meetings).
Diverse backgroundsWorking together with a collaborative mindset.
Ensuring there is diversity (in education, ethnicity, age, working status, sex and gender) in your team to incorporate multiple perspectives.